Hearing about how other charities work and the reassurance that they are coming across the same issues. Picking up tips from others about how to move forwards. Blown away by how amazing and effective all of the charities who spoke are Hearing what the other groups are doing, difficulties encountered and how they have overcome these. Knowing we are not alone in these. Being able to get ideas of resources etc from others in the project Hearing from other groups and the genetics presentation Great to learn about the other rare diseases involved in BDB but also very interesting/useful to hear about research from professionals Learning more about Breaking Down Barriers and finding out about other projects Hearing what other charities have been up to and seeing other ways to go about our work Aamra’s talk and Oscar Sharing with other groups and talking over dinner Do you think this workshop will aid your future work? Yes: 17 No: 0 Please comment: Due to networking Improved understanding of the background to the patient organisations Knowledge of other organisations/charities and how they operate is helpful for taking ideas and also having connections Absolutely, I will implement the tips shared by other organisations Without a doubt! Great to hear about other projects Learnt a deal more about South Asian cultures, resources and barriers Excellent pool of resources from the contacts made Learnt so many things I hadn’t even thought about e.g. media perspective and finding apps which will be really useful Helped me more on what to do and how to move forward with the project Avoiding the pitfalls experienced by groups in year 1, understanding everything time, issues around translation and community development Definitely made some very interesting connections – Aided understanding in reaching out to BME communities Hearing from other charities was good
Hearing about how other charities work and the reassurance that they are coming across the same issues. Picking up tips from others about how to move forwards. Blown away by how amazing and effective all of the charities who spoke are Hearing what the other groups are doing, difficulties encountered and how they have overcome these. Knowing we are not alone in these. Being able to get ideas of resources etc from others in the project Hearing from other groups and the genetics presentation Great to learn about the other rare diseases involved in BDB but also very interesting/useful to hear about research from professionals Learning more about Breaking Down Barriers and finding out about other projects Hearing what other charities have been up to and seeing other ways to go about our work Aamra’s talk and Oscar Sharing with other groups and talking over dinner Do you think this workshop will aid your future work? Yes: 17 No: 0 Please comment: Due to networking Improved understanding of the background to the patient organisations Knowledge of other organisations/charities and how they operate is helpful for taking ideas and also having connections Absolutely, I will implement the tips shared by other organisations Without a doubt! Great to hear about other projects Learnt a deal more about South Asian cultures, resources and barriers Excellent pool of resources from the contacts made Learnt so many things I hadn’t even thought about e.g. media perspective and finding apps which will be really useful Helped me more on what to do and how to move forward with the project Avoiding the pitfalls experienced by groups in year 1, understanding everything time, issues around translation and community development Definitely – made some very interesting connections Aided understanding in reaching out to BME communities Hearing from other charities was good
BDB-Workshop-2-Evaluation-Summary.docx