How has your life Have you been able to Were there certain activities of daily living (such as dressing, showering, grooming, changed since being do things that you had shopping and domestic duties) that people in the to stop doing? had difficulty with before? Has this (program/service)? changed? Are you more confident Were there certain personal or social that you can manage activities that stopped or were difficult (such your health condition on as visiting friends and family, participating in a regular basis? sport, hobby or social clubs, volunteering, taking part in cultural, language or faith communities?). Has this changed? How did the (program/service) help you to change things in a positive way? Probe to identify and explore experiences of participants who feel they have not changed and why. How well is your care How well do the people Has anybody else had a similar experience? coordinated? providing your care work together? Does anybody have anything different? Note: If the term How often did or do you is Probe experiences of fragmentation. ‘coordinated’ have to repeat confusing information that you for participants, had already provided? up’ is a ‘joined suitable synonym. Were you involved as much as you wanted to be in decisions about your care and treatment? Thinking on your What works? What experiences that you doesn’t? shared are there If someone you knew ways the needed help, who (program/service) you put them in contact could be made with? better? If you could change Does anybody else have anything different one thing about the to add? program/service, what would it be? What did you value How come? Does anybody else have anything different most about the to add or discuss? program/service?
How has your life changed since being in the (program/service)? Have you been able to do things that you had to stop doing? Are you more confident that you can manage your health condition on a regular basis? Were there certain activities of daily living (such as dressing, showering, grooming, shopping and domestic duties) that people had difficulty with before? Has this changed? Were there certain personal or social activities that stopped or were difficult (such as visiting friends and family, participating in sport, hobby or social clubs, volunteering, taking part in cultural, language or faith communities?). Has this changed? How did the (program/service) help you to change things in a positive way? Probe to identify and explore experiences of participants who feel they have not changed and why. How well is your care coordinated? Note: If the term ‘coordinated’ is confusing for participants, ‘joined up’ is a suitable synonym. How well do the people providing your care work together? How often did or do you have to repeat information that you had already provided? Has anybody else had a similar experience? Does anybody have anything different? Probe experiences of fragmentation. Were you involved as much as you wanted to be in decisions about your care and treatment? Thinking on your experiences that you shared are there ways the (program/service) could be made better? What works? What doesn’t? If someone you knew needed help, who you put them in contact with? If you could change one thing about the program/service, what would it be? Does anybody else have anything different to add? What did you value most about the program/service? How come? Does anybody else have anything different to add or discuss?
Appendix_D_-_Example_of_Focus_Group_Questions.docx