input electronically on key documents such as the Need Stage Submission and Communication, Engagement and Consultation Strategy. Action: Sarah Marsay / ALL Accountability In response to a query from Neil McCrirrick, Olivia Butterworth explained that, ultimately, the Group would report to the NHS England Board, especially at present as wider governance structures are still to be determined. Ian Townend explained that an Information Standards Approvals Board was being established. Action: Sarah Marsay to liaise with Ian Townend and update the section Scope of the project The use of the or was questioned as it was felt that this term ‘disability’ ‘disabled’ may prevent some people who did not associate themselves with the term from benefitting from the standard. Sarah Marsay explained that the term was used due to the legal basis of the standard coming from the Equality Act which used the term. – It was agreed that the language used in all documentation associated with the standard needed to be appropriate for the target audience. Therefore, in documents aimed at organisations it may be appropriate to use the term as this ‘disabled’ indicated the legal framework; however for public-facing documents it should be avoided. There is also the wider question of the definition of ‘disability.’ In response to queries, it was agreed that the section needed amending to ‘in scope’ clarify that and did not include foreign ‘alternative languages’ ‘interpreters’ languages. References to information and communication support also need to include advocacy. Discussion took place as to whether the standard would include signage. Gerry Firkins explained that this would not be in the remit of the Information Standards Board / Health and Social Care Information Centre. However, there is a need to link into the Estates Strategy and other standards for estates. Action: Sarah Marsay to add to of list ‘out scope’ In response to a query from Philipa Bragman, it was explained that the standard would include a requirement for organisations to train their staff so that they could implement the standard, i.e. in collecting information about information and people’s communication needs and preferences, and acting upon them. However, it would not include any wider need for training around, for example, disability awareness, as this would fall out of scope.
input electronically on key documents such as the Need Stage Submission and Communication, Engagement and Consultation Strategy. Action: Sarah Marsay / ALL Accountability In response to a query from Neil McCrirrick, Olivia Butterworth explained that, ultimately, the Group would report to the NHS England Board, especially at present as wider governance structures are still to be determined. Ian Townend explained that an Information Standards Approvals Board was being established. Action: Sarah Marsay to liaise with Ian Townend and update the section Scope of the project The use of the term ‘disability’ or ‘disabled’ was questioned as it was felt that this may prevent some people who did not associate themselves with the term from benefitting from the standard. Sarah Marsay explained that the term was used due to the legal basis of the standard coming from the Equality Act – which used the term. It was agreed that the language used in all documentation associated with the standard needed to be appropriate for the target audience. Therefore, in documents aimed at organisations it may be appropriate to use the term ‘disabled’ as this indicated the legal framework; however for public-facing documents it should be avoided. There is also the wider question of the definition of ‘disability.’ In response to queries, it was agreed that the ‘in scope’ section needed amending to clarify that ‘alternative languages’ and ‘interpreters’ did not include foreign languages. References to information and communication support also need to include advocacy. Discussion took place as to whether the standard would include signage. Gerry Firkins explained that this would not be in the remit of the Information Standards Board / Health and Social Care Information Centre. However, there is a need to link into the Estates Strategy and other standards for estates. Action: Sarah Marsay to add to ‘out of scope’ list In response to a query from Philipa Bragman, it was explained that the standard would include a requirement for organisations to train their staff so that they could implement the standard, i.e. in collecting information about people’s information and communication needs and preferences, and acting upon them. However, it would not include any wider need for training around, for example, disability awareness, as this would fall out of scope.
acc-info-ad-grp-mtg-150513.docx