Australia and New Zealand Dialysis and Transplantation Registry Introduction Dialysis and transplantation, together referred to as renal replacement therapy (RRT), are used to treat end-stage kidney disease (ESKD). ESKD is the most severe form of chronic kidney disease (Stage 5 kidney disease/renal failure) and represents a significant burden on the Australian healthcare system. Dialysis alone contributes to approximately 15 per cent of all hospitalisations in Australia. A 2010 analysis of the projected economic impact of ESKD in Australia to 2020, estimated the present value cumulative cost of RRT for all prevalent cases to be between $11.3 and $12.3 billion (based on population incidence projections and annualised treatment costs). ESRD is associated with a number of other chronic diseases, including cardiovascular disease and diabetes and is both a significant detriment to patient quality of life, and contributor to mortality in Australia. Over 50 people die every day with kidney related disease. ANZDATA was founded in the late to register all patients receiving renal replacement therapy, where the intention is to treat long term (renal function is not expected to recover). All renal units, including transplanting, dialysis and satellite dialysis units, across Australia and New Zealand provide data to the registry. The registry compiles data on incidence and prevalence of end stage kidney disease, treatment (haemodialysis, peritoneal dialysis, transplant), complications (including dialysis technique failure and transplant graft loss) and mortality. In 2013 there were more than 21 000 prevalent ESKD patients reported by the registry. Appendix B, Figure 7: Participation in ANZDATA registry Appendix B, Table 10: Summary of ANZDATA registry Category Content Establishment Founded in late 1970s Patient coverage All renal units providing details on renal replacement patients in Australia and New Zealand, including transplanting units, satellite haemodialysis units Managed by ANZDATA Royal Adelaide Hospital – Funding sources Australian Organ and Tissue Authority, New Zealand Ministry of Health, Kidney Health Australia Principal metrics RRT mortality specific to modality of treatment, RRT complications (peritonitis, dialysis technique failure), comorbidities Analysis Quality control, data parsing registry Feedback processes Quarterly unit benchmarking reports, annual report public – disclosure of site level outcomes. Key performance indicators
Australia and New Zealand Dialysis and Transplantation Registry Introduction Dialysis and transplantation, together referred to as renal replacement therapy (RRT), are used to treat end-stage kidney disease (ESKD). ESKD is the most severe form of chronic kidney disease (Stage 5 kidney disease/renal failure) and represents a significant burden on the Australian healthcare system. Dialysis alone contributes to approximately 15 per cent of all hospitalisations in Australia. A 2010 analysis of the projected economic impact of ESKD in Australia to 2020, estimated the present value cumulative cost of RRT for all prevalent cases to be between $11.3 and $12.3 billion (based on population incidence projections and annualised treatment costs). ESRD is associated with a number of other chronic diseases, including cardiovascular disease and diabetes and is both a significant detriment to patient quality of life, and contributor to mortality in Australia. Over 50 people die every day with kidney related disease. ANZDATA was founded in the late to register all patients receiving renal replacement therapy, where the intention is to treat long term (renal function is not expected to recover). All renal units, including transplanting, dialysis and satellite dialysis units, across Australia and New Zealand provide data to the registry. The registry compiles data on incidence and prevalence of end stage kidney disease, treatment (haemodialysis, peritoneal dialysis, transplant), complications (including dialysis technique failure and transplant graft loss) and mortality. In 2013 there were more than 21 000 prevalent ESKD patients reported by the registry. Appendix B, Figure 7: Participation in ANZDATA registry Appendix B, Table 10: Summary of ANZDATA registry Category Content Establishment Founded in late 1970s Patient coverage All renal units providing details on renal replacement patients in Australia and New Zealand, including transplanting units, satellite haemodialysis units Managed by ANZDATA – Royal Adelaide Hospital Funding sources Australian Organ and Tissue Authority, New Zealand Ministry of Health, Kidney Health Australia Principal metrics RRT mortality specific to modality of treatment, RRT complications (peritonitis, dialysis technique failure), comorbidities Analysis Quality control, data parsing registry Feedback processes Quarterly unit benchmarking reports, annual report – public disclosure of site level outcomes. Key performance indicators
Economic-evaluation-of-clinical-quality-registries-Final-report-Nov-2016.docx