17 Felt unable to cope with This question asks if the respondent Developer: Q11 the pain? has felt unable to cope/deal with/put ok up with the pain caused by their endometriosis during the last 4 weeks. 18 Generally felt unwell? This question asks if the respondent Developer: Q12 has generally felt unwell/ill/sick ie. the effect because of their endometriosis during of endometriosis has the last 4 weeks. not been pain alone 19 Felt frustrated because This question asks if the respondent Developer: Q13 your symptoms are not has felt frustrated during the past 4 ok getting better? weeks because the symptoms of their endometriosis are currently not improving/getting better. Frustration is a feeling of agitation and annoyance that comes from being unable to do something or feeling powerless over something. 20 Felt frustrated because This question asks if the respondent Developer: Q14 you are not able to has felt frustrated during the past 4 ok control your symptoms? weeks because they feel unable to do anything that will influence the symptoms of their endometriosis. Frustration is a feeling of agitation and annoyance that comes from being unable to do something or feeling powerless over something. 21 Felt unable to forget This question asks if the respondent Developer: Q15 your symptoms? has felt unable to forget/has felt ok incapable of forgetting (about) the symptoms of their endometriosis during the last 4 weeks in other – words, times when they could not stop thinking about their symptoms of endometriosis 22 Felt as though your This question asks if the respondent Developer: Q16 symptoms are ruling has felt during the past 4 that ok your life? the symptoms of their endometriosis are ruling their life. your life’ refers to the way in ‘Ruling which the symptoms affect how the respondent lives their life. The symptoms may stop them from doing certain things or cause the respondent to change how and when they do things. They may have to take the symptoms into consideration in everything they do.
17 Q11 Felt unable to cope with the pain? This question asks if the respondent has felt unable to cope/deal with/put up with the pain caused by their endometriosis during the last 4 weeks. Developer: ok 18 Q12 Generally felt unwell? This question asks if the respondent has generally felt unwell/ill/sick because of their endometriosis during the last 4 weeks. Developer: ie. the effect of endometriosis has not been pain alone 19 Q13 Felt frustrated because your symptoms are not getting better? This question asks if the respondent has felt frustrated during the past 4 weeks because the symptoms of their endometriosis are currently not improving/getting better. Frustration is a feeling of agitation and annoyance that comes from being unable to do something or feeling powerless over something. Developer: ok 20 Q14 Felt frustrated because you are not able to control your symptoms? This question asks if the respondent has felt frustrated during the past 4 weeks because they feel unable to do anything that will influence the symptoms of their endometriosis. Frustration is a feeling of agitation and annoyance that comes from being unable to do something or feeling powerless over something. Developer: ok 21 Q15 Felt unable to forget your symptoms? This question asks if the respondent has felt unable to forget/has felt incapable of forgetting (about) the symptoms of their endometriosis during the last 4 weeks – in other words, times when they could not stop thinking about their symptoms of endometriosis Developer: ok 22 Q16 Felt as though your symptoms are ruling your life? This question asks if the respondent has felt during the past 4 that the symptoms of their endometriosis are ruling their life. ‘Ruling your life’ refers to the way in which the symptoms affect how the respondent lives their life. The symptoms may stop them from doing certain things or cause the respondent to change how and when they do things. They may have to take the symptoms into consideration in everything they do. Developer: ok
EHP-Concept-Elaboration-29-06-12-new-2.docx