New Zealand Bill of The Bill of Rights Act sets out the rights The Bill of Rights applies to a person being physically involved in Rights Act 1990 and fundamental freedoms of anyone research (as opposed to using their health information). subject to New Zealand law. the Act every person has the right not to be subject to medical or scientific experimentation without that person’s consent (section 10) and everyone has the right to refuse to undergo any medical treatment (section 11). Privacy Act 1993 The Privacy Act regulates how public The Act specifies 12 information privacy principles. In particular, and private sector agencies may collect, principle 5 governs the way personal information is stored and principle hold, use and disclose personal 11 places restrictions on how people and organisations can disclose information about identifiable personal information. individuals. Protection of Personal The Protection of Personal and Property The Act permits a welfare guardian to consent on behalf of a person and Property Rights Act Rights Act provides for the protection without capacity to take part in research that is conducted for the 1988 and promotion of the personal and purpose of saving their life or preventing serious damage to that property rights of those who are no person’s health (section 18). longer fully able to manage their own affairs.
New Zealand Bill of Rights Act 1990 The Bill of Rights Act sets out the rights and fundamental freedoms of anyone subject to New Zealand law. The Bill of Rights applies to a person being physically involved in research (as opposed to using their health information). the Act every person has the right not to be subject to medical or scientific experimentation without that person’s consent (section 10) and everyone has the right to refuse to undergo any medical treatment (section 11). Privacy Act 1993 The Privacy Act regulates how public and private sector agencies may collect, hold, use and disclose personal information about identifiable individuals. The Act specifies 12 information privacy principles. In particular, principle 5 governs the way personal information is stored and principle 11 places restrictions on how people and organisations can disclose personal information. Protection of Personal and Property Rights Act 1988 The Protection of Personal and Property Rights Act provides for the protection and promotion of the personal and property rights of those who are no longer fully able to manage their own affairs. The Act permits a welfare guardian to consent on behalf of a person without capacity to take part in research that is conducted for the purpose of saving their life or preventing serious damage to that person’s health (section 18).
consultation-cross-sectoral-ethics-arrangements-health-disability-research.docx