establish a formal governance process to training and education requirements oversee the development, implementation access to professional clinical and ongoing review of systems for supervision, and formal and informal care. If a committee has this role, it debriefing, to suit the varied of should: clinicians access to support and debriefing for have appropriate responsibilities delegated clinical staff to it, and be accountable for its decisions evaluation, audit and feedback and actions to the executive processes, and reporting monitor the effectiveness of interventions requirements. and education have a role in reviewing performance data provide advice the allocation of The health service organisation should resources identify potential variations in the include consumers, interdisciplinary application of the policy framework that team members, managers and might exist in different circumstances executives. (such as at different times of day or in satellite locations). The health service organisation should develop systems to ensure that essential The health service organisation should resources required for the provision of establish policies and processes for safe and high-quality paediatric end-of-life advance care planning, and tissue care (e.g. private space for family donation, limitations of medical treatment, meetings, equipment and medications, symptom management and end-of-life memory making materials, access to toys decision-making to ensure that the care and education resources) are always delivered in response to deterioration is operational and available. consistent with appropriate clinical practice, the child and their parents’ The health service organisation should expressed wishes, and the best interests work with local community-based service of the child. providers and families to build capacity for children to be cared for in the preferred The health service organisation should place of care (e.g. at home).
training and education requirements access to professional clinical supervision, and formal and informal debriefing, to suit the varied of clinicians access to support and debriefing for clinical staff evaluation, audit and feedback processes, and reporting requirements. The health service organisation should identify potential variations in the application of the policy framework that might exist in different circumstances (such as at different times of day or in satellite locations). The health service organisation should establish policies and processes for advance care planning, and tissue donation, limitations of medical treatment, symptom management and end-of-life decision-making to ensure that the care delivered in response to deterioration is consistent with appropriate clinical practice, the child and their parents’ expressed wishes, and the best interests of the child. The health service organisation should establish a formal governance process to oversee the development, implementation and ongoing review of systems for care. If a committee has this role, it should: have appropriate responsibilities delegated to it, and be accountable for its decisions and actions to the executive monitor the effectiveness of interventions and education have a role in reviewing performance data provide advice the allocation of resources include consumers, interdisciplinary team members, managers and executives. The health service organisation should develop systems to ensure that essential resources required for the provision of safe and high-quality paediatric end-of-life care (e.g. private space for family meetings, equipment and medications, memory making materials, access to toys and education resources) are always operational and available. The health service organisation should work with local community-based service providers and families to build capacity for children to be cared for in the preferred place of care (e.g. at home).
Consensus-statement-essential-elements-for-safe-and-high-quality-paediatric-end-of-life-care-Dec-2016.docx