helpfamiliesplan Executive summary Families of disabled people with complex communication needs often provide their loved ones with around-the-clock support. Family carers provide support day-in and day-out, and year after year, often with limited opportunities to take a break. Although many disabled people with complex needs will live independently in residential services or in supported housing, many others remain living in the family home well into adulthood. As a result, family carers often continue to provide a high-level of support for their loved ones, as they themselves enter older age. Due to the central role they play in providing care and support, many family carers have profound fears about what will happen when they are no longer able to fulfil their caring role. Despite this, only 25 per cent of families have felt able to make concrete plans about who should care in the eventuality of their illness or This situation is creating profound uncertainty and worry for the future among disabled people and their families. It also means that some disabled people with complex communication are at risk of
helpfamiliesplan Executive summary Families of disabled people with complex communication needs often provide their loved ones with around-the-clock support. Family carers provide support day-in and day-out, and year after year, often with limited opportunities to take a break. Although many disabled people with complex needs will live independently in residential services or in supported housing, many others remain living in the family home well into adulthood. As a result, family carers often continue to provide a high-level of support for their loved ones, as they themselves enter older age. Due to the central role they play in providing care and support, many family carers have profound fears about what will happen when they are no longer able to fulfil their caring role. Despite this, only 25 per cent of families have felt able to make concrete plans about who should care in the eventuality of their illness or This situation is creating profound uncertainty and worry for the future among disabled people and their families. It also means that some disabled people with complex communication are at risk of
campaign-when-im-gone-securing-long-term-care-and-support-for-disabled-adults.docx