the boundaries between ‘informal’ and ‘formal’ care, which is crucial in the course of this paving the way for more inclusive conceptualisations of ‘care’, querying the informal and formal care theoretical divide, but also to add complexity to the use of ‘support’ work. Returning to Debbie and Daniela, they have known each other for several years and have spaces for each other in their lives. Here Daniela and Diana (Daniela’s care manager) describe Debbie’s work very informally: Diana: Yes well I suppose from a care management point of view you can put on your care plan support Daniela to do this that and the other, but you cant think of everything, cos your care plan would be a couple of miles long. Daniela: We even go out for lunch now and again, she takes me everywhere she can think of. Diana: Including her own house for Christmas dinner. Daniela: Yes Christmas dinner and the sister’s birthday party. Diana: It’s almost like a residential service non residentially there is just about everything there would be in a residential service but it’s from somebody who doesn’t actually live with you . …. Diana: Debbie helped with removing the bath and installing a shower and then redecorating it all, Debbie did all that as well, there’s all that contacting plumbers and electricians and all that …[...]... I suppose we are just so lucky that Debbie is such a nice person. Debbie also speaks of her role very fluidly: Debbie: She has asked me to go to the doctors with her today and I’ll go, I wont get paid for it, but I will go with her cos she doesn’t like going on her own and there is nowhere in the care plan to cover currently medical appointments, interviews, reviews, one time I put in and 12 hours I had lost cos I went to the psychiatrist with her, we had a couple of reviews because of the behaviour, 12 hours and I didn’t get paid for it. Katie: Do you do that in your own time?
the boundaries between ‘informal’ and ‘formal’ care, which is crucial in the course of this paving the way for more inclusive conceptualisations of ‘care’, querying the informal and formal care theoretical divide, but also to add complexity to the use of ‘support’ work. Returning to Debbie and Daniela, they have known each other for several years and have spaces for each other in their lives. Here Daniela and Diana (Daniela’s care manager) describe Debbie’s work very informally: Diana: Yes well I suppose from a care management point of view you can put on your care plan support Daniela to do this that and the other, but you cant think of everything, cos your care plan would be a couple of miles long. Daniela: We even go out for lunch now and again, she takes me everywhere she can think of. Diana: Including her own house for Christmas dinner. Daniela: Yes Christmas dinner and the sister’s birthday party. Diana: It’s almost like a residential service non residentially there is just about everything there would be in a residential service but it’s from somebody who doesn’t actually live with you . …. Diana: Debbie helped with removing the bath and installing a shower and then redecorating it all, Debbie did all that as well, there’s all that contacting plumbers and electricians and all that …[...]... I suppose we are just so lucky that Debbie is such a nice person. Debbie also speaks of her role very fluidly: Debbie: She has asked me to go to the doctors with her today and I’ll go, I wont get paid for it, but I will go with her cos she doesn’t like going on her own and there is nowhere in the care plan to cover currently medical appointments, interviews, reviews, one time I put in and 12 hours I had lost cos I went to the psychiatrist with her, we had a couple of reviews because of the behaviour, 12 hours and I didn’t get paid for it. Katie: Do you do that in your own time?
White_Rose_final_changing_relations.docx