>> We look at the baseline data and compared autism to other disabilities, and we did not find any differences in their baseline or change, in terms of parental outcome. That was interesting. It might be that this particular sample, it's not a representative study, because a lot of research does show higher stress. Actually with Latinos, I have a study where we found that autism might actually not be as high stress as regular I/DD, but that's really not a representative study, either, so it's hard to say. I think all mothers or all caregivers of children with I/DD face some sort of stress, and when there are behavioral challenges, it becomes more stressful, is one of a lot of the research shows. >> ROBIN: we have another couple of comments that we want to share. First, there's a comment that there's material in Spanish available from the national Down Syndrome Society, aging and Down syndrome, and if anyone's interested, they can call the in DSS office in New York. Another comment from a mother of a youth with learning disabilities, working with the community, says that she has a concert about doing online presentations, since more than 90% of the Latino population doesn't know how to navigate the Internet and may not have computers at home. >> Exacta, that's why we did not do it online and that's why we use Promotora. I was suggesting middle-class if we were going to do that. >> ROBIN: he found that everyone had a cell phone broadly across Latino immunity? >> Yes, that was one of the things that we were trying to think, should we integrate technology in some way. >> FEMALE So far, we would not turn anyone away, so far, those that have cell phones and are willing to take part in the study. >> SANDY: Not everyone has a smart phone, but we decided that they had a flip phone, if they agree to receive text, they can still participate that way. >> ROBIN: that is such a fascinating development, that today, everybody texts.
>> We look at the baseline data and compared autism to other disabilities, and we did not find any differences in their baseline or change, in terms of parental outcome. That was interesting. It might be that this particular sample, it's not a representative study, because a lot of research does show higher stress. Actually with Latinos, I have a study where we found that autism might actually not be as high stress as regular I/DD, but that's really not a representative study, either, so it's hard to say. I think all mothers or all caregivers of children with I/DD face some sort of stress, and when there are behavioral challenges, it becomes more stressful, is one of a lot of the research shows. >> ROBIN: we have another couple of comments that we want to share. First, there's a comment that there's material in Spanish available from the national Down Syndrome Society, aging and Down syndrome, and if anyone's interested, they can call the in DSS office in New York. Another comment from a mother of a youth with learning disabilities, working with the community, says that she has a concert about doing online presentations, since more than 90% of the Latino population doesn't know how to navigate the Internet and may not have computers at home. >> Exacta, that's why we did not do it online and that's why we use Promotora. I was suggesting middle-class if we were going to do that. >> ROBIN: he found that everyone had a cell phone broadly across Latino immunity? >> Yes, that was one of the things that we were trying to think, should we integrate technology in some way. >> FEMALE So far, we would not turn anyone away, so far, those that have cell phones and are willing to take part in the study. >> SANDY: Not everyone has a smart phone, but we decided that they had a flip phone, if they agree to receive text, they can still participate that way. >> ROBIN: that is such a fascinating development, that today, everybody texts.
The-Arc-Webinar-Caring-for-Myself-9-14-2016.docx