What Why How When In addition to failsafe This is what we recommend you These are the reasons we are This is how you might do This is how often we do recommending this this recommend you undertake the action/check Baby affected by a major To ensure timely intervention Check that choices of Weekly Audit of completion of haemoglobin disorder; have for women/couples high risk’ continuing or terminating short and long-term ‘at systems in place to: of an affected pregnancy the pregnancy pregnancy outcome provide information and have been followed up forms (link) gestation choice We have anecdotal and at offer by a trained HCP evidence from screening safety annually supported by NHS incidents of: SCT programmes delays between decision to resources and of alert forms to accept TOP and accessing refer for TOP if requested NBS laboratory TOP which also impacts on provide counselling and follow annually choice of method of TOP up support counselling is not always record timeliness of offer and done well tests and results and to help interpret the outcomes on women that newborn blood spot have had PND screening result report anonymised pregnancy outcome data on women that have had PND alert newborn screening laboratory record antenatal and PND results on the blood spot card Trust response: this row is for you to enter results or summarise whether you have these checks in place. If not, you can use this space to identify gaps and develop an action plan What Why How When In addition to failsafe
What This is what we recommend you do Why These are the reasons we are recommending this How This is how you might do this When This is how often we recommend you undertake the action/check In addition to failsafe Baby affected by a major haemoglobin disorder; have systems in place to: provide information and choice by a trained HCP supported by NHS SCT programmes resources and refer for TOP if requested provide counselling and follow up support record timeliness of offer and tests and results and outcomes on women that have had PND report anonymised pregnancy outcome data on women that have had PND alert newborn screening laboratory record antenatal and PND results on the blood spot card To ensure timely intervention for women/couples ‘at high risk’ of an affected pregnancy We have anecdotal and evidence from screening safety incidents of: delays between decision to accept TOP and accessing TOP which also impacts on choice of method of TOP counselling is not always done well to help interpret the newborn blood spot screening result Check that choices of continuing or terminating the pregnancy have been followed up Weekly Audit of completion of short and long-term pregnancy outcome forms (link) gestation at offer annually of alert forms to NBS laboratory annually Trust response: this row is for you to enter results or summarise whether you have these checks in place. If not, you can use this space to identify gaps and develop an action plan What Why How When In addition to failsafe
SCT_Checks_and_audits_template_v1_1.docx