Participants of how there were activities that they used to do for fun, but which they could no longer do: can’t anymore. And I did love dancing... I went to a wedding in September and ...I “I couldn’t get up and dance. I could have cried my eyes out.” (Female, Retired, A) lose interest in, shopping. You know, it just, becomes a grudge.” (Female, retired, C) “You lost the enjoyment?” (Researcher) “You’ve right. There’s no browsing anymore,” “That’s Because of the presence of pain, often together with tiredness, it seemed that there were days where respondents were the wrong frame of mind’ to experience enjoyment. Linked to this was the ‘in unpredictable nature of pain, and hence a trend of good and bad days. I feel fine up top I’ll have a better day. But if I wake up in the morning and I don’t feel “...if right up here, you know the day is going to be worse” (Male, not employed, B) my pain comes on I get short-tempered.” (Male, employed, B) “When Respect and Identity: Because the presence of pain is not easily visible, other people question whether it is genuine or whether those reporting pain are on an act’ or attention’. There were stories of how, ‘putting ‘seeking when attempting to claim income support or other assistance, were hostile and challenged ‘officials’ the extent to which patients were debilitated by pain. Because of the fear that people do not believe them or are by their pain participants battle to find a balance between being honest and the story’ that they are suffering less than they actually ‘selling are. Other people appear confused by the fact that they are experiencing no improvement. always hate when someone says are you?’ I can’t lie to I can’t turn round and say “I ‘how ‘em, I’m absolutely bloody fine, when I’m not, you know. But you can’t, you can’t turn round and say ah, terrible!” (Male, not employed, B) people ask if you’re alright, at some point they want to hear a positive response don’t “When they, and if they don’t, they don’t know how to deal with it.” (Male, not employed, C)
Participants of how there were activities that they used to do for fun, but which they could no longer do: “I can’t anymore. And I did love dancing... I went to a wedding in September and ...I couldn’t get up and dance. I could have cried my eyes out.” (Female, Retired, A) “You lose interest in, shopping. You know, it just, becomes a grudge.” (Female, retired, C) “You’ve lost the enjoyment?” (Researcher) “That’s right. There’s no browsing anymore,” Because of the presence of pain, often together with tiredness, it seemed that there were days where respondents were ‘in the wrong frame of mind’ to experience enjoyment. Linked to this was the unpredictable nature of pain, and hence a trend of good and bad days. “...if I feel fine up top I’ll have a better day. But if I wake up in the morning and I don’t feel right up here, you know the day is going to be worse” (Male, not employed, B) “When my pain comes on I get short-tempered.” (Male, employed, B) Respect and Identity: Because the presence of pain is not easily visible, other people question whether it is genuine or whether those reporting pain are ‘putting on an act’ or ‘seeking attention’. There were stories of how, when attempting to claim income support or other assistance, ‘officials’ were hostile and challenged the extent to which patients were debilitated by pain. Because of the fear that people do not believe them or are by their pain participants battle to find a balance between being honest and ‘selling the story’ that they are suffering less than they actually are. Other people appear confused by the fact that they are experiencing no improvement. “I always hate when someone says ‘how are you?’ I can’t lie to ‘em, I can’t turn round and say I’m absolutely bloody fine, when I’m not, you know. But you can’t, you can’t turn round and say ah, terrible!” (Male, not employed, B) “When people ask if you’re alright, at some point they want to hear a positive response don’t they, and if they don’t, they don’t know how to deal with it.” (Male, not employed, C)
SocIndRes_Revisions_for_Pure.docx