This is what we recommend you This is how often we do recommend you undertake the action/check Inconclusive and carrier To ensure timely intervention for that all women Weekly Audit that the for ‘tests results and affected mother women/couples high risk’ of and babies’ biological dads’ and ‘at ‘information SCD; have systems in place to an affected pregnancy fathers who want the for couple at risk of a ensure: test are tested; baby with thalassaemia results are documented in the we have evidence from record inconclusive, major or sickle cell maternity records screening safety incidents carrier and affected disease’ were given and communicated to women and of: results and match recorded in the their healthcare professional biological father not offered against the eligible maternity notes/system provide written information screening offer of screening to baby's delayed diagnosis and/or population annually biological father treatment counselling and prenatal maternal morbidity and diagnosis to women if: mortality in affected mothers baby’s father is not unexpected affected births because baby’s biological available father was not tested/result risk assessment of not followed up inconclusive results indicates potential at risk couple match baby’s fathers result with antenatal sample Trust response: this row is for you to enter results or summarise whether you have these checks in place. If not, you can use this space to identify gaps and develop an action plan Why How When In addition to failsafe What These are the reasons we are This is how you might do This is how often we recommending this this recommend you
This is what we recommend you do This is how often we recommend you undertake the action/check Inconclusive and carrier results and affected mother SCD; have systems in place to ensure: results are documented in the maternity records communicated to women and their healthcare professional provide written information offer of screening to baby's biological father counselling and prenatal diagnosis to women if: baby’s father is not available risk assessment of inconclusive results indicates potential at risk couple match baby’s fathers result with antenatal sample To ensure timely intervention for women/couples ‘at high risk’ of an affected pregnancy we have evidence from screening safety incidents of: biological father not offered screening delayed diagnosis and/or treatment maternal morbidity and mortality in affected mothers unexpected affected births because baby’s biological father was not tested/result not followed up that all women and babies’ biological fathers who want the test are tested; record inconclusive, carrier and affected results and match against the eligible population Weekly Audit that the ‘tests for dads’ and ‘information for couple at risk of a baby with thalassaemia major or sickle cell disease’ were given and recorded in the maternity notes/system annually Trust response: this row is for you to enter results or summarise whether you have these checks in place. If not, you can use this space to identify gaps and develop an action plan What Why These are the reasons we are recommending this How This is how you might do this When This is how often we recommend you In addition to failsafe
SCT_Checks_and_audits_template_v1_1.docx