If you want a demonstration of Smart Patients before you can distribute these materials, please contact and we can arrange one for you and your colleagues. You are free to modify these materials as needed in your dissemination efforts. We ask that you try to disseminate this service as widely as possible throughout your CDRN or PPRN. It is possible you may need IRB approval for this work and the materials may need to be modified. We cannot modify these materials for you, however, please feel free to do so. If you have any questions about dissemination of Smart Patients as a research activity, please contact . If you want the brochure modified for your organization, please contact and we would be happy to work with you. Please contact Kathryn Burn at to modify the sign up for your organization. “widgets” If there are materials that are not included in this packet that you would like developed for your use, please contact and we would be happy to work with you. What materials are included in this packet? A Frequently Asked Questions (FAQ) for Clinical Data or Patient Powered Research Network (CDRN or PPRN) partners. An FAQ for non-research and non-PCORnet affiliated partners. An invitation email/letter template for patients and their families. Sign up examples for websites. “widget” Example materials used by the REACHnet Clinical Data Research Network to disseminate Smart Patients to their Help in our Hands online patient research community. A brochure that can be used for patients and their families that can be mailed, emailed, or placed in clinical office settings. How do I use these materials? Getting Started Please read the following sections of this packet to understand what Smart Patients can offer your CDRN or PPRN: Memo to PCORnet CDRNs/PPRNs for Weight Management Community (page 5) Smart Patients: FAQs for PCORnet Partners (page 7) Encouraging Patients to Join Smart Patients Directly If you do not need to work with clinical staff, CDRN/PPRN leadership, or any other for patients and can outreach patients directly, then please use the “gatekeeper” following sections of this packet: Smart Patients: FAQs for PCORnet Partners (page 7) Patient Recruitment Email/Letter for Smart Patients Weight Management Community (page 9) General Smart Patients Sign up for PCORnet Bariatric Study (page 10) “Widget”
If you want a demonstration of Smart Patients before you can distribute these materials, please contact and we can arrange one for you and your colleagues. You are free to modify these materials as needed in your dissemination efforts. We ask that you try to disseminate this service as widely as possible throughout your CDRN or PPRN. It is possible you may need IRB approval for this work and the materials may need to be modified. We cannot modify these materials for you, however, please feel free to do so. If you have any questions about dissemination of Smart Patients as a research activity, please contact . If you want the brochure modified for your organization, please contact and we would be happy to work with you. Please contact Kathryn Burn at to modify the sign up “widgets” for your organization. If there are materials that are not included in this packet that you would like developed for your use, please contact and we would be happy to work with you. What materials are included in this packet? A Frequently Asked Questions (FAQ) for Clinical Data or Patient Powered Research Network (CDRN or PPRN) partners. An FAQ for non-research and non-PCORnet affiliated partners. An invitation email/letter template for patients and their families. Sign up “widget” examples for websites. Example materials used by the REACHnet Clinical Data Research Network to disseminate Smart Patients to their Help in our Hands online patient research community. A brochure that can be used for patients and their families that can be mailed, emailed, or placed in clinical office settings. How do I use these materials? Getting Started Please read the following sections of this packet to understand what Smart Patients can offer your CDRN or PPRN: Memo to PCORnet CDRNs/PPRNs for Weight Management Community (page 5) Smart Patients: FAQs for PCORnet Partners (page 7) Encouraging Patients to Join Smart Patients Directly If you do not need to work with clinical staff, CDRN/PPRN leadership, or any other “gatekeeper” for patients and can outreach patients directly, then please use the following sections of this packet: Smart Patients: FAQs for PCORnet Partners (page 7) Patient Recruitment Email/Letter for Smart Patients Weight Management Community (page 9) General Smart Patients Sign up “Widget” for PCORnet Bariatric Study (page 10)
SMART-PATIENTS-Dissemination-Packet-FINAL-8-7-17.docx