International International NA ISOQOL recommends ISOQOL is a non-profit society to advance the scientific study of Society of minimum standards for health-related quality of life and other patient-centred outcomes Quality of Life PROMs used in to identify effective interventions, enhance the quality of health Research (and outcomes and care and promote the health of populations. ISOQOL fosters the Australian comparative effectiveness worldwide exchange of information through: scientific Special research. publications, international conferences, educational outreach, Interest and support for health-related quality of life Group) initiatives. ISOQOL is an international society with activities focused on promotion of high quality research in the science of health-related quality of life (HRQoL) measurement and outcomes. An Australian Special Interest Group (SIG) has been initiated. The Australia SIG brings together Australian-based researchers in the field of quality of life research. Given geographical remoteness of Australian quality of life researchers from colleagues in the northern hemisphere, the SIG aims to support local researchers by facilitating communication and opportunities for collaboration and exchange of ideas. International The Prospective Quality of life and A prospective international patient-outcomes registry for Cochlear™ international utilities. children. To date, the Cochlear P-IROS has recruited implant Paediatric clinics across Australia, China, India, Indonesia, Turkey and Implanted Vietnam. Australian site: Hear and Say (Brisbane, Australia). Recipient registry for Observational children who Study have (Cochlear implanted one or more hearing devices. * PROMs specific information includes instruments used, generic or condition-specific measures, frequency, sample, mode of administration, if information available ** Comments include current and / or planned future use, if information available
International Society of Quality of Life Research (and Australian Special Interest Group) International NA ISOQOL recommends minimum standards for PROMs used in outcomes and comparative effectiveness research. ISOQOL is a non-profit society to advance the scientific study of health-related quality of life and other patient-centred outcomes to identify effective interventions, enhance the quality of health care and promote the health of populations. ISOQOL fosters the worldwide exchange of information through: scientific publications, international conferences, educational outreach, and support for health-related quality of life initiatives. ISOQOL is an international society with activities focused on promotion of high quality research in the science of health-related quality of life (HRQoL) measurement and outcomes. An Australian Special Interest Group (SIG) has been initiated. The Australia SIG brings together Australian-based researchers in the field of quality of life research. Given geographical remoteness of Australian quality of life researchers from colleagues in the northern hemisphere, the SIG aims to support local researchers by facilitating communication and opportunities for collaboration and exchange of ideas. The Cochlear™ Paediatric Implanted Recipient Observational Study (Cochlear International Prospective international registry for children who have implanted one or more hearing devices. Quality of life and utilities. A prospective international patient-outcomes registry for children. To date, the Cochlear P-IROS has recruited implant clinics across Australia, China, India, Indonesia, Turkey and Vietnam. Australian site: Hear and Say (Brisbane, Australia). * PROMs specific information includes instruments used, generic or condition-specific measures, frequency, sample, mode of administration, if information available ** Comments include current and / or planned future use, if information available
PROMs-Environmental-Scan-December-2016.docx