Department Government VIC Measuring The five PROMs In 2014, fieldwork was completed for a state-wide PROMs of Health and quality of life questionnaires contained 58 survey, which aimed to assess the quality of life of cancer Human after cancer common questions and survivors in Victoria with five different cancer types and at three Services – between 9-24 additional different time points since diagnosis. The NHS PROMs Victorian questions, depending on questionnaires for breast, bowel, prostate cancer and cancer type, drawn from lymphoma were used, and in addition the VCCC Cancer existing validated tools. developed a fifth questionnaire for survivors of melanoma. Centre Eligible participants were identified and recruited through the In 2014, conducted a quality Victorian Cancer Registry and the survey data is currently being of life survey for people analysed. The data will be used to assess the contribution that living with and beyond demographics, disease-related and other factors have on quality cancer in Victoria in of life to inform future programs. collaboration with the Cancer Council Victoria (CCV) Victorian Cancer Registry (VCR). Department Public VIC Patient Uses the NHS questionnaire Under the Living with Cancer Program, the VCCC have initiated a of Health and healthcare information that is cancer specific and cancer patient experience survey to track progress in future Human provider will be used to spans the care trajectory, years. The survey is based on that used in the UK and will allow Services – drive from diagnosis and benchmarking against the UK as a whole and against UK Victorian treatment through to institutions specifically. The study on PROMs will also enable Comprehensive initiatives and follow-up care. benchmarking and document patient quality of life. Cancer Centre better models of clinical care. This is part of the VCCC’s commitment to reduce the burden of cancer and ensure patient needs are met.
Department of Health and Human Services – Victorian Cancer Centre Government VIC Measuring quality of life after cancer The five PROMs questionnaires contained 58 common questions and between 9-24 additional questions, depending on cancer type, drawn from existing validated tools. In 2014, conducted a quality of life survey for people living with and beyond cancer in Victoria in collaboration with the Cancer Council Victoria (CCV) Victorian Cancer Registry (VCR). In 2014, fieldwork was completed for a state-wide PROMs survey, which aimed to assess the quality of life of cancer survivors in Victoria with five different cancer types and at three different time points since diagnosis. The NHS PROMs questionnaires for breast, bowel, prostate cancer and lymphoma were used, and in addition the VCCC developed a fifth questionnaire for survivors of melanoma. Eligible participants were identified and recruited through the Victorian Cancer Registry and the survey data is currently being analysed. The data will be used to assess the contribution that demographics, disease-related and other factors have on quality of life to inform future programs. Department of Health and Human Services – Victorian Comprehensive Cancer Centre Public healthcare provider VIC Patient information will be used to drive initiatives and better models of clinical care. This is part of the VCCC’s commitment to reduce the burden of cancer and ensure patient needs are met. Uses the NHS questionnaire that is cancer specific and spans the care trajectory, from diagnosis and treatment through to follow-up care. Under the Living with Cancer Program, the VCCC have initiated a cancer patient experience survey to track progress in future years. The survey is based on that used in the UK and will allow benchmarking against the UK as a whole and against UK institutions specifically. The study on PROMs will also enable benchmarking and document patient quality of life.
PROMs-Environmental-Scan-December-2016.docx