Monash Academic VIC The primary Registries currently Clinical registries are large databases that are managed and University institution / purpose of a collecting PROMs analysed to: (Clinical research clinical • VSTORM –trauma EQ5D – Identify variation in treatment and outcomes (including Quality centre registry is to measuring PROMs) Registries) monitor – usual activities – Monitor appropriateness of treatment patient – Mobility – Identify deficiencies in access to treatment outcomes and – pain/discomfort – Provide an early warning system if care deteriorates report on the – personal care – Facilitate research to improve quality of care. quality of the – anxiety/depression care for a • Victorian Cardiac The primary aim of the Prostate Cancer Outcomes Registry - medical Outcomes Registry-EQ5D Australia and New Zealand (PCOR-ANZ) is to improve the quality disease or • Victorian Lung Cancer of care provided to men with prostate cancer. Information from condition, or Registry-SF12 * no short the registry will be used to monitor diagnosis, treatment, for an area or form disease-specific tool complications, and long term quality of life outcomes. This specialisation • Prostate Cancer Outcome information will be used to help identify trends and whether of health Registry-Australia and New gaps exist in service provision. Appears to be under construction, service Zealand will include some PROM data. provision. Monash Academic VIC The registry VOTOR includes measures The Injury Burden and Outcomes Program of VOTOR is to University institution / collects of pain and HRQoL (uses facilitate and conduct research focused on quantifying the (Victorian research information burden of orthopaedic trauma, and validating and improving Orthopaedic centre about methods for measuring burden and outcomes (including Trauma orthopaedic quality of life). Outcomes injuries, Registry) treatment, complications and outcomes based on admissions to adult Major Trauma Service hospitals in Victoria.
Monash University (Clinical Quality Registries) Academic institution / research centre VIC The primary purpose of a clinical registry is to monitor patient outcomes and report on the quality of the care for a medical disease or condition, or for an area or specialisation of health service provision. Registries currently collecting PROMs • VSTORM –trauma EQ5D measuring – usual activities – Mobility – pain/discomfort – personal care – anxiety/depression • Victorian Cardiac Outcomes Registry-EQ5D • Victorian Lung Cancer Registry-SF12 * no short form disease-specific tool • Prostate Cancer Outcome Registry-Australia and New Zealand Clinical registries are large databases that are managed and analysed to: – Identify variation in treatment and outcomes (including PROMs) – Monitor appropriateness of treatment – Identify deficiencies in access to treatment – Provide an early warning system if care deteriorates – Facilitate research to improve quality of care. The primary aim of the Prostate Cancer Outcomes Registry - Australia and New Zealand (PCOR-ANZ) is to improve the quality of care provided to men with prostate cancer. Information from the registry will be used to monitor diagnosis, treatment, complications, and long term quality of life outcomes. This information will be used to help identify trends and whether gaps exist in service provision. Appears to be under construction, will include some PROM data. Monash University (Victorian Orthopaedic Trauma Outcomes Registry) Academic institution / research centre VIC The registry collects information about orthopaedic injuries, treatment, complications and outcomes based on admissions to adult Major Trauma Service hospitals in Victoria. VOTOR includes measures of pain and HRQoL (uses The Injury Burden and Outcomes Program of VOTOR is to facilitate and conduct research focused on quantifying the burden of orthopaedic trauma, and validating and improving methods for measuring burden and outcomes (including quality of life).
PROMs-Environmental-Scan-December-2016.docx