Having recently done the gadget guide training I said something that “that’s bump-ons can help with. A bump-on gets put onto the socket above the top pin hole, then put one on the top of the plug and line the two up”. Members also share if they find a low vision aide to be helpful e.g. someone was debating whether it was worth buying a talking watch and three people all at once said most definitely I be without “yes wouldn’t mine”. On occasions our members share about their forthcoming treatment, it’s nice that they feel we have created a to voice anything they ‘safe place’ share with loved ones and the following meeting members will ask mightn’t how they got on. The camaraderie that has formed within the group led us to take part in an awareness church service in March 2017, all doing our bit to explain the condition, how it affects us and that there are things we can still do. We gave readings and chose hymns that were appropriate to the theme. It was very well received and, pardon the pun, it opened the eyes. congregation’s Milford Haven Macular Society support has doubled group’s membership since it began two years ago, proving the need for it. We all look forward to going to meetings as we have become a close-knit group who share tips and the not so good things. In its way the group is alleviating isolation, confidence and a little at a time proving to ourselves that building people’s not being able to see the end of the world; that we are capable of isn’t more than we think we are and despite the age range of our members, sight loss brings us together. Macular Society help line: 0300 3030 111 The Norrie Disease Society. The Norrie Disease foundation was set up in early 2017 by three mums have Norrie disease and whom shared the same vision to who’s sons promote vital new research and provide more support to families by further strengthening the Norrie network.
Having recently done the gadget guide training I said “that’s something that bump-ons can help with. A bump-on gets put onto the socket above the top pin hole, then put one on the top of the plug and line the two up”. Members also share if they find a low vision aide to be helpful e.g. someone was debating whether it was worth buying a talking watch and three people all at once said “yes most definitely I wouldn’t be without mine”. On occasions our members share about their forthcoming treatment, it’s nice that they feel we have created a ‘safe place’ to voice anything they mightn’t share with loved ones and the following meeting members will ask how they got on. The camaraderie that has formed within the group led us to take part in an awareness church service in March 2017, all doing our bit to explain the condition, how it affects us and that there are things we can still do. We gave readings and chose hymns that were appropriate to the theme. It was very well received and, pardon the pun, it opened the congregation’s eyes. Milford Haven Macular Society support group’s membership has doubled since it began two years ago, proving the need for it. We all look forward to going to meetings as we have become a close-knit group who share tips and the not so good things. In its way the group is alleviating isolation, building people’s confidence and a little at a time proving to ourselves that not being able to see isn’t the end of the world; that we are capable of more than we think we are and despite the age range of our members, sight loss brings us together. Macular Society help line: 0300 3030 111 The Norrie Disease Society. The Norrie Disease foundation was set up in early 2017 by three mums who’s sons have Norrie disease and whom shared the same vision to promote vital new research and provide more support to families by further strengthening the Norrie network.
perspectif_supplement_2.docx