What will happen to the results of the study? We aim to use the findings from the research study to gain a better understanding about care for people with different neurological conditions. This includes understanding about how people live with a neurological condition, their experience of care support, and any problems or difficulties they encounter that change their care requirements. We hope to be able to publish the results from the research study in peer reviewed scientific journals. Any published findings or quotations will use pseudonyms and will maintain your confidentiality and anonymity. You will not be personally identified in any reports or publications. What will happen if I to carry on with the study? don’t want Your participation in the research study is voluntary and therefore you are free to withdraw at any point without giving any reason. If you do decide to withdraw we would like to maintain any data we have already collected up to your withdrawal. If you do decide to withdraw this will not affect your regular treatment or care now or at any time in the future. Who can I talk to if there is a problem? If you have a concern about any aspect of this research study, you should ask to speak to the researchers involved who will do their best to deal with your concerns (see contact details below). If you still remain unhappy and wish to complain formally you should contact Patient Support Services (Patient Support Services, Southampton General Hospital, or ). email In the unlikely event that something does go wrong and you are harmed during the research study and this is due to you may have grounds for a legal action someone’s negligence then for compensation from University Hospital Southampton NHS Foundation Trust. However, you may have to pay your legal costs. The normal National Health Service complaints mechanisms will still be available to you. Our contact details Research Officer Chief Investigator Admin contact Veena Agarwal Dr Christopher Kipps Sam Fairhurst, Research Email: Wessex Neurological Mobile : 07393762105 Centre Tel: 023 8120 6132/07393 762 Mailpoint 101 Level A 105 Southampton General Email: sam.fairhurst@nhs.net Hospital Tremona Road Southampton Life Changes Southampton Community Counselling Service SO16 6YD Website with online referral form: Tel:023 8120 5434 www.lifechangescounselling.org.uk Email: ckipps@nhs.net Phone : 023 8040 5569
What will happen to the results of the study? We aim to use the findings from the research study to gain a better understanding about care for people with different neurological conditions. This includes understanding about how people live with a neurological condition, their experience of care support, and any problems or difficulties they encounter that change their care requirements. We hope to be able to publish the results from the research study in peer reviewed scientific journals. Any published findings or quotations will use pseudonyms and will maintain your confidentiality and anonymity. You will not be personally identified in any reports or publications. What will happen if I don’t want to carry on with the study? Your participation in the research study is voluntary and therefore you are free to withdraw at any point without giving any reason. If you do decide to withdraw we would like to maintain any data we have already collected up to your withdrawal. If you do decide to withdraw this will not affect your regular treatment or care now or at any time in the future. Who can I talk to if there is a problem? If you have a concern about any aspect of this research study, you should ask to speak to the researchers involved who will do their best to deal with your concerns (see contact details below). If you still remain unhappy and wish to complain formally you should contact Patient Support Services (Patient Support Services, Southampton General Hospital, or email ). In the unlikely event that something does go wrong and you are harmed during the research study and this is due to someone’s negligence then you may have grounds for a legal action for compensation from University Hospital Southampton NHS Foundation Trust. However, you may have to pay your legal costs. The normal National Health Service complaints mechanisms will still be available to you. Our contact details Research Officer Veena Agarwal Email: Mobile : 07393762105 Chief Investigator Dr Christopher Kipps Wessex Neurological Centre Mailpoint 101 Level A Southampton General Hospital Tremona Road Southampton SO16 6YD Tel:023 8120 5434 Email: ckipps@nhs.net Admin contact Sam Fairhurst, Research Tel: 023 8120 6132/07393 762 105 Email: sam.fairhurst@nhs.net Southampton Life Changes Community Counselling Service Website with online referral form: www.lifechangescounselling.org.uk Phone : 023 8040 5569
PIS%20Patient%20Survey%20v.1.1-1510672781.docx