Dave Clifford, PatientsLikeMe Matthew Holt, Health 2.0 Patient advocates— Dave deBronkart (ePatient Dave) Regina Holliday, Medical Advocacy Blog System and apps vendors— Allen Wenner, MD, Instant Medical History Kenneth Mandl, MD, MPH, Hospital Boston and Harvard Medical Children’s School Harry Bailes, Family Health Network Provider organizations— Ted Eytan, MD, MS, MPH, Kaiser Permanente Daniel Sands, MD, MPH, Beth Israel Deaconess Medical Center and Harvard Medical School Charles Safran, MD, MS, Harvard Medical School and Beth Israel Deaconess Medical Center Susan Woods, MD, MPH, Portland Veterans Administration Medical Center, My HealtheVet Kathleen Frisbee, MPH, Veterans Health Administration—Mobile Health Strategy initiative Legal counsel Chad Broulliard, JD, Foster & Eldridge LLP B: PGHD While much of the technology enabling the projected expansion of PGHD is new, many underlying issues are not, and discussion of these has a long history in the literature. In his 1972 article, A Patient-Oriented Value Slack foresaw the drastically “Patient Power: System,”30 changed environment in medical chart traditionally closed to the patient, will be which, “the declassified at last and become a document developed jointly by patient and doctor.” Dr. Slack’s editorial, to advocated for the involvement in health “The Patient’s Right Decide”31 patient’s
Dave Clifford, PatientsLikeMe Matthew Holt, Health 2.0 Patient advocates— Dave deBronkart (ePatient Dave) Regina Holliday, Medical Advocacy Blog System and apps vendors— Allen Wenner, MD, Instant Medical History Kenneth Mandl, MD, MPH, Children’s Hospital Boston and Harvard Medical School Harry Bailes, Family Health Network Provider organizations— Ted Eytan, MD, MS, MPH, Kaiser Permanente Daniel Sands, MD, MPH, Beth Israel Deaconess Medical Center and Harvard Medical School Charles Safran, MD, MS, Harvard Medical School and Beth Israel Deaconess Medical Center Susan Woods, MD, MPH, Portland Veterans Administration Medical Center, My HealtheVet Kathleen Frisbee, MPH, Veterans Health Administration—Mobile Health Strategy initiative Legal counsel Chad Broulliard, JD, Foster & Eldridge LLP B: PGHD While much of the technology enabling the projected expansion of PGHD is new, many underlying issues are not, and discussion of these has a long history in the literature. In his 1972 article, “Patient Power: A Patient-Oriented Value System,”30 Slack foresaw the drastically changed environment in which, “the medical chart traditionally closed to the patient, will be declassified at last and become a document developed jointly by patient and doctor.” Dr. Slack’s editorial, “The Patient’s Right to Decide”31 advocated for the patient’s involvement in health
PGHDWhitePaper.docx