Consent To Collect And Store Your Genetic Data For Future Research When Identity Of Subject Is Coded And The Codes Are Kept In Locked Files By The Person Conducting The Research As part of the research project _______________ (Name of Principal Investigator) we are seeking your consent to store your genetic data. Reason for Storing Your Data: You have recently agreed to participate in the research study listed above, that is funded by the National Institute for Health (NIH). That research study involves determining certain genetic information about you. The NIH has a policy of sharing genetic information with other researchers to help further new discoveries on disease treatment and cures. Genetic factors are those that people are born with and that can affect other family members. What is included in the genetic information of yours that will be stored in this federal data bank, will be determined by the research study you have already agreed to. The person in charge of the research project you agreed to (also known as the Principal Investigator) or a representative of the Principal Investigator will describe this data sharing to you and answer all of your questions. Your participation in allowing your data to be shared and stored in this NIH data bank is entirely voluntary. Before you decide whether or not to take part, read the information below and ask questions about anything you do not understand. If you choose not to participate in this data banking and data sharing study you will not be penalized or lose any benefits that you would otherwise be entitled to. What will Happen to Your Genetic Data: If you agree to this data banking and data sharing study, your genetic data and any other data that is collected in the study will be placed into a secure location(a large computer) at the University of Florida (UF). Once the other study you agreed to (listed above) is completed, your genetic data and other data collected on you during that study will have all identifiable information removed and then be sent to the NIH data bank. Your de-identified data that is sent will be given a unique ID number, but only those at UF will be able to match this unique ID number to identify you.
Consent To Collect And Store Your Genetic Data For Future Research When Identity Of Subject Is Coded And The Codes Are Kept In Locked Files By The Person Conducting The Research As part of the research project _______________ (Name of Principal Investigator) we are seeking your consent to store your genetic data. Reason for Storing Your Data: You have recently agreed to participate in the research study listed above, that is funded by the National Institute for Health (NIH). That research study involves determining certain genetic information about you. The NIH has a policy of sharing genetic information with other researchers to help further new discoveries on disease treatment and cures. Genetic factors are those that people are born with and that can affect other family members. What is included in the genetic information of yours that will be stored in this federal data bank, will be determined by the research study you have already agreed to. The person in charge of the research project you agreed to (also known as the Principal Investigator) or a representative of the Principal Investigator will describe this data sharing to you and answer all of your questions. Your participation in allowing your data to be shared and stored in this NIH data bank is entirely voluntary. Before you decide whether or not to take part, read the information below and ask questions about anything you do not understand. If you choose not to participate in this data banking and data sharing study you will not be penalized or lose any benefits that you would otherwise be entitled to. What will Happen to Your Genetic Data: If you agree to this data banking and data sharing study, your genetic data and any other data that is collected in the study will be placed into a secure location(a large computer) at the University of Florida (UF). Once the other study you agreed to (listed above) is completed, your genetic data and other data collected on you during that study will have all identifiable information removed and then be sent to the NIH data bank. Your de-identified data that is sent will be given a unique ID number, but only those at UF will be able to match this unique ID number to identify you.
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