Data sources, data standards and plans for storage, access, archival and preservation are summarized in Table 7. All released data will have accompanying data dictionary and appropriate documentation that describes the data collection method and potential limitations for usage of the data. For public use, de-identified datasets, data dictionary and relevant documentation will be saved in the GDPH file server to provide access to the data. Data that cannot be de-identified will be provided on request under a data-use agreement. Table 7. Data Management Plan Archival and Data Sources Standards Storage Access Preservation Plan NBCCEDP Minimum Data MDE definition Stored in the GDPH file server in The GBCCP Electronic records: Elements (MDEs), and data quality compliance with HIPAA regulations. database can be stored in the clinical data from indicators accessed by the GDPH file server providers GBCCP state indefinitely Pre- and post-test survey for Data dictionary Stored in the GDPH file server in staff only. Aggregated Paper records: Health Exam (WHE) created by the compliance with HIPAA regulations Women’s data reports are stored in the state trainings and WHE refresher GBCCP evaluator All survey and interview data will shared with the office for 3 years, trainings, provider assessment have participant names and contact program staff and stored in the survey, health system information removed, with a unique at all levels. state archive center assessment interview identifier allowing linkage if the need for 2 years arises while maintaining confidentiality. Clinic data collection form Data dictionary Stored in the GDPH file server and Clinic data can Stored in the from health systems provided by the the Breast and Cervical Baseline and be accessed by GDPH file server CDC Annual Reporting System the GBCCP indefinitely in compliance with HIPAA state staff and regulations responsible health system staff only.
Data sources, data standards and plans for storage, access, archival and preservation are summarized in Table 7. All released data will have accompanying data dictionary and appropriate documentation that describes the data collection method and potential limitations for usage of the data. For public use, de-identified datasets, data dictionary and relevant documentation will be saved in the GDPH file server to provide access to the data. Data that cannot be de-identified will be provided on request under a data-use agreement. Table 7. Data Management Plan Data Sources Standards Storage Access Archival and Preservation Plan NBCCEDP Minimum Data Elements (MDEs), clinical data from providers MDE definition and data quality indicators Stored in the GDPH file server in compliance with HIPAA regulations. The GBCCP database can be accessed by the GBCCP state staff only. Aggregated data reports are shared with the program staff at all levels. Electronic records: stored in the GDPH file server indefinitely Paper records: stored in the state office for 3 years, and stored in the state archive center for 2 years Pre- and post-test survey for Women’s Health Exam (WHE) trainings and WHE refresher trainings, provider assessment survey, health system assessment interview Data dictionary created by the GBCCP evaluator Stored in the GDPH file server in compliance with HIPAA regulations All survey and interview data will have participant names and contact information removed, with a unique identifier allowing linkage if the need arises while maintaining confidentiality. Clinic data collection form from health systems Data dictionary provided by the CDC Stored in the GDPH file server and the Breast and Cervical Baseline and Annual Reporting System in compliance with HIPAA regulations Clinic data can be accessed by the GBCCP state staff and responsible health system staff only. Stored in the GDPH file server indefinitely
GBCCP%20Evaluation%20Plan%20May%202018.docx