Acknowledge participant’s voice, what you are hearing: sound tired. Has “You something changed in your world?” Rationale: Participants will often share what is happening. Once s/he has talked about his situation, s/he may be willing to respond to some research questions. Potential script should you start off with some resistance: you willing to answer “Are at least some of the questions for me? If s/he agrees, you could then say but “ “Great, please tell me when you don't want to do anymore. If you want to answer all my questions, that would be great. But you don't have to.” When interacting with the participant, be fully present, listen carefully, and acknowledge each conversation’s nuances. Rationale: It can be tempting to rush through the questions, particularly trial that are hard to ask and answer. When the data collection visit is rushed, one runs the risk that the participant will just tell you what they think you want to hear or what will make the interview end sooner. If the study participant is irritable or uncomfortable, the CRC may experience something such as everything is just fine” or just get this done.” Give “Fine, “Let’s person the option of stopping address what you are observing directly. this – “Is becoming too wearisome for you?” Whenever possible, have the same person conduct the initial and all follow up visits. Data collection interactions should feel safe and valued. Rationale: This continuity fosters rapport and trust with the participant. People provide richer, fuller data (particularly subjective data) when they trust you, feel like they you, and feel respected. “know” Remember your role you are to follow the protocol and conduct research the same – way, every time, for every participant. Your role is not to diagnose, treat or medically intervene.” When gathering functional status, have some pocket” questions that you ask to “back get an accurate report on their level. See for some sample probing questions that can be used when inquiring about a person’s functional status. End of visit At the end of each / phone call, let the participant know what to expect for the next visit. For example: will call you in a week. It will take no more than 10 “I minutes.”
Acknowledge participant’s voice, what you are hearing: “You sound tired. Has something changed in your world?” Rationale: Participants will often share what is happening. Once s/he has talked about his situation, s/he may be willing to respond to some research questions. Potential script should you start off with some resistance: “Are you willing to answer at least some of the questions for me? “ If s/he agrees, you could then say “Great, but please tell me when you don't want to do anymore. If you want to answer all my questions, that would be great. But you don't have to.” When interacting with the participant, be fully present, listen carefully, and acknowledge each conversation’s nuances. Rationale: It can be tempting to rush through the questions, particularly that are hard to ask and answer. When the data collection visit is rushed, one runs the risk that the participant will just tell you what they think you want to hear or what will make the interview end sooner. If the study participant is irritable or uncomfortable, the CRC may experience something such as “Fine, everything is just fine” or “Let’s just get this done.” Give person the option of stopping – address what you are observing directly. “Is this becoming too wearisome for you?” Whenever possible, have the same person conduct the initial and all follow up visits. Data collection interactions should feel safe and valued. Rationale: This continuity fosters rapport and trust with the participant. People provide richer, fuller data (particularly subjective data) when they trust you, feel like they “know” you, and feel respected. Remember your role – you are to follow the protocol and conduct research the same way, every time, for every participant. Your role is not to diagnose, treat or medically intervene.” When gathering functional status, have some “back pocket” questions that you ask to get an accurate report on their level. See for some sample probing questions that can be used when inquiring about a person’s functional status. End of visit At the end of each / phone call, let the participant know what to expect for the next visit. For example: “I will call you in a week. It will take no more than 10 minutes.” trial
PCRC_CRChandbookV1_Distributed.docx