understanding of what the ‘research’ is about and form their judgements whether or not to participate based on these reasons (). The reasons are often entirely different from the researcher’s objectives or the expectations of ethics review committees which are often couched in terms of informed consent jargon – understanding of risk and benefits, freedom, privacy and confidentiality. Another issue with respect to consent is the expectation from the ethics review committee that participants must be given a period not less than 24hrs to decide if they would like to participate in the research was another concern. This requirement was difficult to fulfil because it conflicts with social and cultural norms of the study setting. In Tudun Jukun, traditional hierarchies are respected. These hierarchies and structured by age, gender and traditional authority and are very influential in shaping peoples' freedom with respect to decisions about certain aspects of their lives including, for example, whether or not they can take part in this research. A wife, for example, would be violating her normative role in that context if she decides against participating in research that her husband had already consented to, and such action could have long-term consequences beyond the life span of the research. For example, there was an occasion when one of the gatekeepers warned that my insistence on further seeking individual consent after he had secured same from the participants would undermine his position in the community. Third, as described above (see dilemmas related to research governance), recruiting institution affiliated participants such as staff of the Local Government Area (LGA) health office and Hospitals presents a considerable challenge in meeting requirement of the ethics committee at the University of Sheffield. Dilemmas in adhering to standardised ethical procedures Adhering to prescribed ethics procedures such as ensuring privacy and confidentiality also presented significant challenges, I did not have control over the interview location (as explained above). One female interviewee, for example, requested that we wait for her husband to come in first before we can start the interview (PP002; 61-70; Traditional birth attendant). Occasionally during interviews family members could get in. Several interviews were interrupted by family members or neighbours coming in during an interview, and they ensured that they went through the lengthy traditional greeting with everyone that was present before the moved on. Dilemmas about giving money to participants
understanding of what the ‘research’ is about and form their judgements whether or not to participate based on these reasons (). The reasons are often entirely different from the researcher’s objectives or the expectations of ethics review committees which are often couched in terms of informed consent jargon – understanding of risk and benefits, freedom, privacy and confidentiality. Another issue with respect to consent is the expectation from the ethics review committee that participants must be given a period not less than 24hrs to decide if they would like to participate in the research was another concern. This requirement was difficult to fulfil because it conflicts with social and cultural norms of the study setting. In Tudun Jukun, traditional hierarchies are respected. These hierarchies and structured by age, gender and traditional authority and are very influential in shaping peoples' freedom with respect to decisions about certain aspects of their lives including, for example, whether or not they can take part in this research. A wife, for example, would be violating her normative role in that context if she decides against participating in research that her husband had already consented to, and such action could have long-term consequences beyond the life span of the research. For example, there was an occasion when one of the gatekeepers warned that my insistence on further seeking individual consent after he had secured same from the participants would undermine his position in the community. Third, as described above (see dilemmas related to research governance), recruiting institution affiliated participants such as staff of the Local Government Area (LGA) health office and Hospitals presents a considerable challenge in meeting requirement of the ethics committee at the University of Sheffield. Dilemmas in adhering to standardised ethical procedures Adhering to prescribed ethics procedures such as ensuring privacy and confidentiality also presented significant challenges, I did not have control over the interview location (as explained above). One female interviewee, for example, requested that we wait for her husband to come in first before we can start the interview (PP002; 61-70; Traditional birth attendant). Occasionally during interviews family members could get in. Several interviews were interrupted by family members or neighbours coming in during an interview, and they ensured that they went through the lengthy traditional greeting with everyone that was present before the moved on. Dilemmas about giving money to participants
Final%20Copy%20of%20Thesis%2028%20August%202015.docx