QUESTIONS (make sure to ask each item not covered spontaneously) Would you do it again the same way? PROMPTS: What would you keep the same? What would you do differently? you were talking to a group of colleagues doing this kind of Lessons learned “if work, what would you advise and why?” QUESTIONS (make sure to ask each item not covered spontaneously) Identification of users Recruitment of users Numbers and mix of people Preparation or training Involvement (type, level and timing) The particular experience or perspective that users bring Incentives or other supports to participation Do you have any other thoughts that you would like to share? Thank you so very much for making the time to talk to me. Appendix 2. Included Projects Did the project Reason(s) people specifically Clinical context of included or Article(s) involve members patient decision involved may be of vulnerable aid vulnerable populations? Allen et al., Yes Race and Ethnicity Prostate Cancer 2009[28] No (but they were Anderson et al., included within a Older Age Ovarian Cancer 2011[29] diverse population) Arterburn et al., Yes Other: Obesity Obesity 2011[30] Au et al., 2011[31], No (but they were Lam et al., included within a Lower Literacy Breast Cancer 2013[32] diverse population) No members of Auvinen et al., vulnerable Prostate Cancer 2004[33] population(s) reported Bailey Jr. et al., No (but they were Race and Ethnicity; Fragile X 2012[34], Bailey included within a Lower Education Syndrome Jr. et al., 2013[35] diverse population) or Income Barnieh et al., No members of End-Stage Renal 2011[36] vulnerable Disease
QUESTIONS (make sure to ask each item not covered spontaneously) Would you do it again the same way? PROMPTS: What would you keep the same? What would you do differently? Lessons learned “if you were talking to a group of colleagues doing this kind of work, what would you advise and why?” QUESTIONS (make sure to ask each item not covered spontaneously) Identification of users Recruitment of users Numbers and mix of people Preparation or training Involvement (type, level and timing) The particular experience or perspective that users bring Incentives or other supports to participation Do you have any other thoughts that you would like to share? Thank you so very much for making the time to talk to me. Appendix 2. Included Projects Article(s) Did the project specifically involve members of vulnerable populations? Reason(s) people included or involved may be vulnerable Clinical context of patient decision aid Allen et al., 2009[28] Yes Race and Ethnicity Prostate Cancer Anderson et al., 2011[29] No (but they were included within a diverse population) Older Age Ovarian Cancer Arterburn et al., 2011[30] Yes Other: Obesity Obesity Au et al., 2011[31], Lam et al., 2013[32] No (but they were included within a diverse population) Lower Literacy Breast Cancer Auvinen et al., 2004[33] No members of vulnerable population(s) reported Prostate Cancer Bailey Jr. et al., 2012[34], Bailey Jr. et al., 2013[35] No (but they were included within a diverse population) Race and Ethnicity; Lower Education or Income Fragile X Syndrome Barnieh et al., 2011[36] No members of vulnerable End-Stage Renal Disease
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