P Welcome to the first addition of the Focus Future Meetings group newsletter covering events taken from What we want our first cough focus group meeting which Put the trial in your diary details of future dates page 6 was held at the Daisy Building, Castle Hill We want our patents to get involved, we Hospital, on the 29th January 2013. In my understand that the patient is this expert as humble opinion I felt the meeting was a great they live with the condition; we want to success. I came away from the meeting with harness that expertise and get patients a lot of new ideas and really enjoyed chatting Join our blog involved in: with our cough patients and hearing their If you have a computer at hand we like to get you Design and conduct of Clinical points of view talking about your cough and your experiences, fears Research and concerns. Be a part of our blog. To join the chat you The meeting was run by the help of Elaine The delivery of the chronic need to go to site address sign in as and enter password McNichol-Academic Lead for Service user service Cough123. Get writing and tell us your story. and Carer Involvement at University of Review questionnaires, input on Leeds. whether they capture fully extent of issues associated with this Thank You to Elaine for all her help in setting condition. Patients Voice up this focus group, we truly appreciate it. Elaine McNichol, advertised for cough patients to give Let’s go through what we discussed during their story n how cough has affected their lives, you can our meeting. listen to these stories on the following link What you want Chocolate may help a persistent We asked the question what brought you An ingredient in Chocolate which may help people with to our meeting. Things which were felt to a persistent cough. Page 2 be important were:- 50% Ideas, solutions, Miracle! Improve GP awareness A new Chapter to the Thalidomide Keep Updated on new information story Of patients with reflux will have no reflux –related symptoms Support from others in the same Thalidomide relieves disabling cough and improves quality of life in patients with pulmonary fibrosis. Page 3 boat Improve exposure of issues Comments from the Group surrounding Chronic trial Comments from members about the first group meeting. Page 5 Self Help
P Welcome to the first addition of the Focus group newsletter covering events taken from our first cough focus group meeting which was held at the Daisy Building, Castle Hill Hospital, on the 29th January 2013. In my humble opinion I felt the meeting was a great success. I came away from the meeting with a lot of new ideas and really enjoyed chatting with our cough patients and hearing their points of view The meeting was run by the help of Elaine McNichol-Academic Lead for Service user and Carer Involvement at University of Leeds. Thank You to Elaine for all her help in setting up this focus group, we truly appreciate it. Let’s go through what we discussed during our meeting. What you want We asked the question what brought you to our meeting. Things which were felt to be important were:- Ideas, solutions, Miracle! Improve GP awareness Keep Updated on new information Support from others in the same boat Improve exposure of issues surrounding Chronic Self Help What we want We want our patents to get involved, we understand that the patient is this expert as they live with the condition; we want to harness that expertise and get patients involved in: Design and conduct of Clinical Research The delivery of the chronic service Review questionnaires, input on whether they capture fully extent of issues associated with this condition. Chocolate may help a persistent An ingredient in Chocolate which may help people with a persistent cough. Page 2 A new Chapter to the Thalidomide story Thalidomide relieves disabling cough and improves quality of life in patients with pulmonary fibrosis. Page 3 Comments from the Group Comments from members about the first group meeting. Page 5 Future Meetings Put the in your diary details of future dates page 6 Join our blog If you have a computer at hand we like to get you talking about your cough and your experiences, fears and concerns. Be a part of our blog. To join the chat you need to go to site address sign in as and enter password Cough123. Get writing and tell us your story. Patients Voice Elaine McNichol, advertised for cough patients to give their story n how cough has affected their lives, you can listen to these stories on the following link 50% Of patients with reflux –related will have no reflux symptoms trial trial
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