Some people with LD are now looking after parents. They are not known to Adult services. It needs to be flagged up with surgeries too. there is more pressure now than ever before. LD framework did not reflect personalisation (from 200 providers to 40). People have been offered direct payment instead. Family members are spending time to support people with learning disabilities. We need clear information in particular assessment support, how to appeal and complain (flowchart of some sort please) Carers and families should be put on a mailing list so that they know what is going on in their locality. Note: AIS does not allow to send emails out to everyone. Libraries and group can pass on information. Each LIG could set up their own email account and get feedback this way. Carers need meaningful information Charging policies and paying for care consultation: has everyone had a letter yet? consultations should be in easy read. Equal ops. Lobby Supportive communities: come to the LIG? Orange LIG The word respite does not appear anywhere The assessment report going to panel does not get given to the parents beforehand. It can lead to a lot of errors and concerns. Parents generally should be kept informed. Most parents will have an interest in their child whatever how old they are. Launchpad, please keep the parents informed even if there is not much news Not sure if equal partners People should use complaint procedure if not happy Families need to be included if they wise Page 6: community learning does not always know Young carers: what is happening? Page 7: health, magic number is 40!
Some people with LD are now looking after parents. They are not known to Adult services. It needs to be flagged up with surgeries too. there is more pressure now than ever before. LD framework did not reflect personalisation (from 200 providers to 40). People have been offered direct payment instead. Family members are spending time to support people with learning disabilities. We need clear information in particular assessment support, how to appeal and complain (flowchart of some sort please) Carers and families should be put on a mailing list so that they know what is going on in their locality. Note: AIS does not allow to send emails out to everyone. Libraries and group can pass on information. Each LIG could set up their own email account and get feedback this way. Carers need meaningful information Charging policies and paying for care consultation: has everyone had a letter yet? consultations should be in easy read. Equal ops. Lobby Supportive communities: come to the LIG? Orange LIG The word respite does not appear anywhere The assessment report going to panel does not get given to the parents beforehand. It can lead to a lot of errors and concerns. Parents generally should be kept informed. Most parents will have an interest in their child whatever how old they are. Launchpad, please keep the parents informed even if there is not much news Not sure if equal partners People should use complaint procedure if not happy Families need to be included if they wise Page 6: community learning does not always know Young carers: what is happening? Page 7: health, magic number is 40!