Need to empower the people who are afraid to/don’t want to complain Peer-to-peer support should be encouraged to support complaints, as conversations can be difficult for many to have. Duty of care needs to be addressed. A concern floated about the balance between resources being used on independent panels vs. resources being directly allocated to those in need. Does every need to go through a panel, or should there be “complaint” more ability to refer people to the best resolution / learning process. Distinction between systems issues and people’s issues. Complaints not a primary solution focus on capacity building, education, – learning, development Replace the Health and Disability Commission Tūhono/EGL Connector working group What should the Tūhono/EGL Connector NOT do in regards to their roles? Disempower, discriminate or judge No personal gain Not connected to any potential provider Influence or manipulate The needs of the disabled person must ALWAYS come first over the wants of the family there needs to be a delicate balance struck by the connector between professionalism and friendliness Connect, but do not cross boundaries take on responsibilities they are not equipped to handle/not supported to help Care not cure Confuse or impose views e.g. mindful of the terminology between independence and interdependence. Connectors must support families to support minors in their growth towards independence themselves Be isolated peer supervision and support – Information Front End Identify key leaders (and use them) Outreach does not necessarily have to be an independent role if it can be integrated into existing structures. Church groups, Red Cross and MSD floated as places to get the principles of EGL more widespread. A public education program media is imperative.
Need to empower the people who are afraid to/don’t want to complain Peer-to-peer support should be encouraged to support complaints, as conversations can be difficult for many to have. Duty of care needs to be addressed. A concern floated about the balance between resources being used on independent panels vs. resources being directly allocated to those in need. Does every “complaint” need to go through a panel, or should there be more ability to refer people to the best resolution / learning process. Distinction between systems issues and people’s issues. Complaints not a primary solution – focus on capacity building, education, learning, development Replace the Health and Disability Commission Tūhono/EGL Connector working group What should the Tūhono/EGL Connector NOT do in regards to their roles? Disempower, discriminate or judge No personal gain Not connected to any potential provider Influence or manipulate The needs of the disabled person must ALWAYS come first over the wants of the family there needs to be a delicate balance struck by the connector between professionalism and friendliness Connect, but do not cross boundaries take on responsibilities they are not equipped to handle/not supported to help Care not cure Confuse or impose views e.g. mindful of the terminology between independence and interdependence. Connectors must support families to support minors in their growth towards independence themselves Be isolated – peer supervision and support Information Front End Identify key leaders (and use them) Outreach does not necessarily have to be an independent role if it can be integrated into existing structures. Church groups, Red Cross and MSD floated as places to get the principles of EGL more widespread. A public education program media is imperative.