Table 2. Monitoring Patient Experience (question 2) Aspect of Possible high-level indicators Data source options to consider patient experience Percentage of patients: Jurisdictional-led patient survey Patient reporting that they are trial of awareness Communications activity data as a proxy for message reach of Optimal the patient Optimal Cancer Cancer Care Pathway Local health service/hospital data, Care e.g. multidisciplinary team meeting reporting that they obtained Pathways records, patient records a copy of the Optimal Cancer Oncology Information Care Pathway System Percentage of patients: Jurisdictional-led patient survey Information, reporting that they NHS National Cancer Patient Experience Survey (developed by understood their diagnosis the National Health Service in the education who were given written UK, currently adapted and use (diagnosis information about their in some jurisdictions, e.g. NSW and diagnosis Cancer Patient Experience Survey) treatment) who were offered a written Critical Cancer Care Events assessment and care plan (CCCE) Survey patient – experience survey developed in who were given the name of Victoria by Cancer Council Victoria someone who coordinated Capture and reporting of key their care throughout validated patient-reported outcome treatment measures via Oncology Information System (as undertaken in NSW) Local health service/ hospital data, e.g. multidisciplinary team meeting records, patient records Percentage of patients: As above Patient coordination reporting that their GP and appeared to receive enough integration information about diagnosis, of care, care and treatment continuity reporting adequate and involvement in decisions transition about care and treatment reporting that their views were taken into account during treatment Percentage of patients: As above Respect for patient reporting that the possible preference side effects of treatments were explained in an understandable way
Table 2. Monitoring Patient Experience (question 2) Aspect of patient experience Possible high-level indicators Data source options to consider Patient awareness of Optimal Cancer Care Pathways Percentage of patients: reporting that they are of the patient Optimal Cancer Care Pathway reporting that they obtained a copy of the Optimal Cancer Care Pathway Jurisdictional-led patient survey Communications activity data as a proxy for message reach Local health service/hospital data, e.g. multidisciplinary team meeting records, patient records Oncology Information System Information, education (diagnosis and treatment) Percentage of patients: reporting that they understood their diagnosis who were given written information about their diagnosis who were offered a written assessment and care plan who were given the name of someone who coordinated their care throughout treatment Jurisdictional-led patient survey NHS National Cancer Patient Experience Survey (developed by the National Health Service in the UK, currently adapted and use in some jurisdictions, e.g. NSW Cancer Patient Experience Survey) Critical Cancer Care Events (CCCE) Survey – patient experience survey developed in Victoria by Cancer Council Victoria Capture and reporting of key validated patient-reported outcome measures via Oncology Information System (as undertaken in NSW) Local health service/ hospital data, e.g. multidisciplinary team meeting records, patient records Patient coordination and integration of care, continuity and transition Percentage of patients: reporting that their GP appeared to receive enough information about diagnosis, care and treatment reporting adequate involvement in decisions about care and treatment reporting that their views were taken into account during treatment As above Respect for patient preference Percentage of patients: reporting that the possible side effects of treatments were explained in an understandable way As above trial