6 Number in ABDR Registry* Number who Received Product during the year 2009-10 2010-11 2011-12 2012-13 2013-14 2009-10 2010-11 2011-12 2012-13 2013-14 Other Factor Deficiency Factor V Deficiency 14 15 15 14 10 <5 <5 <5 <5 <5 Factor VII Deficiency 52 53 53 54 56 5 5 9 8 8 Factor X Deficiency 14 14 18 17 18 <5 <5 <5 <5 <5 Factor XI Deficiency 142 162 170 181 199 <5 5 7 11 20 Factor XII Deficiency† 22 24 25 23 16 - - - <5 <5 Factor XIII Deficiency 17 18 18 17 19 7 8 9 9 9 Platelet Disorder Platelet - Bernard-Soulier <5 <5 <5 <5 <5 - - - <5 Platelet - Glanzmann's Thrombasthenia 8 12 14 14 15 <5 <5 <5 <5 <5 Platelet - Macrothrombocytopenias 8 9 9 10 10 - - - <5 Platelet - May Hegglin <5 <5 <5 <5 <5 - <5 - - Platelet - Primary Secretion Defect <5 <5 <5 <5 5 - - - - <5 Platelet - Storage Pool Deficiency 17 23 29 27 34 - - <5 <5 <5 (Dense Granule) Platelet - Uncharacterised 139 153 164 161 162 <5 5 - 8 9 Vascular Vascular Disorders - Ehlers Danlos Syndrome 8 9 9 7 9 - - - - - Fibrinogen Fibrinogen - Afibrinogenemia <5 6 6 6 5 - <5 <5 <5 <5 Fibrinogen - Dysfibrinogenemia 12 12 18 22 23 <5 <5 <5 <5 <5 Fibrinogen - Hypofibrinogenemia <5 <5 5 6 11 - - - - - Fibrinogen Dysfunction - Uncharacterised <5 <5 <5 <5 <5 - - - - - * As noted in the section Data quality issues (p14) the data has been improved since previous ABDR Annual Reports. The figures presented here represent the most accurate data currently available. The census date for number of people in the registry is 30 June, the last day of the financial year. †Factor XII Deficiency does not require treatment with products, but is included as a diagnostic category.
6 Number in ABDR Registry* Number who Received Product during the year 2009-10 2010-11 2011-12 2012-13 2013-14 2009-10 2010-11 2011-12 2012-13 2013-14 Other Factor Deficiency Factor V Deficiency 14 15 15 14 10 <5 <5 <5 <5 <5 Factor VII Deficiency 52 53 53 54 56 5 5 9 8 8 Factor X Deficiency 14 14 18 17 18 <5 <5 <5 <5 <5 Factor XI Deficiency 142 162 170 181 199 <5 5 7 11 20 Factor XII Deficiency† 22 24 25 23 16 - - - <5 <5 Factor XIII Deficiency 17 18 18 17 19 7 8 9 9 9 Platelet Disorder Platelet - Bernard-Soulier <5 <5 <5 <5 <5 - - - <5 Platelet - Glanzmann's Thrombasthenia 8 12 14 14 15 <5 <5 <5 <5 <5 Platelet - Macrothrombocytopenias 8 9 9 10 10 - - - <5 Platelet - May Hegglin <5 <5 <5 <5 <5 - <5 - - Platelet - Primary Secretion Defect <5 <5 <5 <5 5 - - - - <5 Platelet - Storage Pool (Dense Granule) Deficiency 17 23 29 27 34 - - <5 <5 <5 Platelet - Uncharacterised 139 153 164 161 162 <5 5 - 8 9 Vascular Vascular Disorders - Ehlers Danlos Syndrome 8 9 9 7 9 - - - - - Fibrinogen Fibrinogen - Afibrinogenemia <5 6 6 6 5 - <5 <5 <5 <5 Fibrinogen - Dysfibrinogenemia 12 12 18 22 23 <5 <5 <5 <5 <5 Fibrinogen - Hypofibrinogenemia <5 <5 5 6 11 - - - - - Fibrinogen Dysfunction - Uncharacterised <5 <5 <5 <5 <5 - - - - - * As noted in the section Data quality issues (p14) the data has been improved since previous ABDR Annual Reports. The figures presented here represent the most accurate data currently available. The census date for number of people in the registry is 30 June, the last day of the financial year. †Factor XII Deficiency does not require treatment with products, but is included as a diagnostic category.