Me My child Another family Someone No member or loved one else 1. Have you or has anyone you know ever experienced a seizure? 7 4 9 9 10 # Strongly # Agree #Neutral # Disagree # Strongly Agree Disagree 2. ESETT is an important study to do. 26 8 2 0 0 3. If you developed a seizure that would not stop, you would be okay with being included in ESETT without giving your consent ahead of time. 23 7 1 2 1 4. If you are/were a parent, and your child developed a seizure that would not stop, would you be okay with him/her being included in ESETT without giving your consent ahead of time. 20 11 0 2 1 5. Do you think that ESETT researchers will seriously consider what community members like you have to say about this study before starting it? 24 0 8 0 2 6. Do you feel that you have been given enough information to give your informed opinion about whether you think it is okay for researchers to do the ESETT study? 32 0 0 0 4 7. Would you like to tell doctors that you do not want to participate in ESETT? 4 0 1 0 23 Demographics Community Categories Events Participants Geographic 4 105 Seizure-related 2 30 Total 6 135 Age Participants Average 50.04 Gender Participants Female 24 12 Male Missing Data 0 Ethnicity Participants
Me My child Another family member or loved one Someone else No 1. Have you or has anyone you know ever experienced a seizure? 7 4 9 9 10 # Strongly Agree # Agree #Neutral # Disagree # Strongly Disagree 2. ESETT is an important study to do. 26 8 2 0 0 3. If you developed a seizure that would not stop, you would be okay with being included in ESETT without giving your consent ahead of time. 23 7 1 2 1 4. If you are/were a parent, and your child developed a seizure that would not stop, would you be okay with him/her being included in ESETT without giving your consent ahead of time. 20 11 0 2 1 5. Do you think that ESETT researchers will seriously consider what community members like you have to say about this study before starting it? 24 0 8 0 2 6. Do you feel that you have been given enough information to give your informed opinion about whether you think it is okay for researchers to do the ESETT study? 32 0 0 0 4 7. Would you like to tell doctors that you do not want to participate in ESETT? 4 0 1 0 23 Demographics Community Categories Events Participants Geographic 4 105 Seizure-related 2 30 Total 6 135 Age Participants Average 50.04 Gender Participants Female 24 Male 12 Missing Data 0 Ethnicity Participants