In addition, study participants will be asked to share their experience in the study through an anonymous survey given [insert timing, e.g. three months after recruitment is complete]. The will help illustrate participants’ satisfaction with the study’s conduct or Participant Satisfaction Survey areas for improvement. The distribution of a survey to participants also demonstrates the study team values their opinion and seeks to enhance their study experience. See Appendix for The Participant Satisfaction Survey. The following resources/materials will be used to communicate study progress: Resources/Materials Purpose/Use Audience [Participant Newsletter] To keep participants informed of Study participants study progress Note: See the for a template of this resource. [Site Newsletter] To keep site staff informed of Site staff study progress Note: See the for a template of this resource. [Webinar Slide Deck] To organize a webinar for participants participants and sites to hear Note: See the for a template of this directly from the principal Site staff resource. investigator Referring physicians [Participant Satisfaction Survey] To assess participants’ Study participants satisfaction with the study Note: See the for a template of this resource. SHOWING APPECIATION The study team is committed to ensuring participants, caregivers and sites feel appreciated and understand the importance of their participation. It is also important to express gratitude to referring clinicians to maintain a long-term referral network. The study team will show its gratitude to participants, referring clinicians and site staff in the following ways: [Send you cards to participants/caregivers after completing X visits] [Send birthday cards to participants] [Send holiday cards to participants/caregivers in December] [Send thank you cards to sites after study completion] [Send thank you cards to referring clinicians] [Include messages of gratitude in participant and site newsletters and webinars] [Express gratitude to participants/caregivers at each Participants will also receive the following tokens according to the below schedule: Timing Gift Item Audience
In addition, study participants will be asked to share their experience in the study through an anonymous survey given [insert timing, e.g. three months after recruitment is complete]. The Participant Satisfaction Survey will help illustrate participants’ satisfaction with the study’s conduct or areas for improvement. The distribution of a survey to participants also demonstrates the study team values their opinion and seeks to enhance their study experience. See Appendix for The Participant Satisfaction Survey. The following resources/materials will be used to communicate study progress: Resources/Materials Purpose/Use Audience [Participant Newsletter] Note: See the for a template of this resource. To keep participants informed of study progress Study participants [Site Newsletter] Note: See the for a template of this resource. To keep site staff informed of study progress Site staff [Webinar Slide Deck] Note: See the for a template of this resource. To organize a webinar for participants and sites to hear directly from the principal investigator participants Site staff Referring physicians [Participant Satisfaction Survey] Note: See the for a template of this resource. To assess participants’ satisfaction with the study Study participants SHOWING APPECIATION The study team is committed to ensuring participants, caregivers and sites feel appreciated and understand the importance of their participation. It is also important to express gratitude to referring clinicians to maintain a long-term referral network. The study team will show its gratitude to participants, referring clinicians and site staff in the following ways: [Send you cards to participants/caregivers after completing X visits] [Send birthday cards to participants] [Send holiday cards to participants/caregivers in December] [Send thank you cards to sites after study completion] [Send thank you cards to referring clinicians] [Include messages of gratitude in participant and site newsletters and webinars] [Express gratitude to participants/caregivers at each Participants will also receive the following tokens according to the below schedule: Timing Gift Item Audience