organizations and programs. 2.b. Establish and Very Form a Statewide Hold an initial meeting of Start by establishing under or in KDHE August 2010: maintain a Kansas High - Kansas Genetics charter stakeholders in conjunction with the Newborn Additional Genetics Advisory #1 Advisory Council conjunction with a Screening Advisory Council (NSAC). meeting of Council and relevant Priority with relevant Newborn Screening Continue doing this until it is genetics subcommittees. subcommittees. Advisory Council (NSAC) established enough to warrant a stakeholder The advisory group meeting. separate meeting. group following should be Newborn comprised of Identify and invite Other suggestions Screening members at a high stakeholders outside the Research statute that covers Advisory Council enough level to NASC. NBS Advisory Council to Meeting make changes in determine how much leeway in their organization. subcommittees, number of Possible meetings per year, etc. Committees under Utilize phone and electronic this group could meeting formats to maximize include. stakeholder time and Education/ involvement. Workforce Consider holding NSAC Development twice/year and the Kansas education and Genetics Advisory Council business twice/year. Funding Policy Website/ Communications 2.c. Employ a full-time Very Within the next (1) Explore funding Jamey Kendall, Genetics KDHE and July 1, 2012 State Genetics High five years, have a opportunities Coordinator, KDHE (Note: Ms. Policymakers Coordinator. dedicated State Kendall functions in this role (2) Procure funding within Genetics majority of position’s duties KDHE or through grant Coordinator are related to Newborn Screening)
organizations and programs. 2.b. Establish and maintain a Kansas Genetics Advisory Council and relevant subcommittees. Very High - #1 Priority Form a Statewide Kansas Genetics Advisory Council with relevant subcommittees. The advisory group should be comprised of members at a high enough level to make changes in their organization. Possible Committees under this group could include. Education/ Workforce Development education and business Funding Policy Website/ Communications Hold an initial meeting of charter stakeholders in conjunction with a Newborn Screening Advisory Council (NSAC) meeting. Identify and invite stakeholders outside the NASC. Start by establishing under or in conjunction with the Newborn Screening Advisory Council (NSAC). Continue doing this until it is established enough to warrant a separate meeting. Other suggestions Research statute that covers NBS Advisory Council to determine how much leeway in subcommittees, number of meetings per year, etc. Utilize phone and electronic meeting formats to maximize stakeholder time and involvement. Consider holding NSAC twice/year and the Kansas Genetics Advisory Council twice/year. KDHE August 2010: Additional meeting of genetics stakeholder group following Newborn Screening Advisory Council Meeting 2.c. Employ a full-time State Genetics Coordinator. Very High Within the next five years, have a dedicated State Genetics Coordinator (1) Explore funding opportunities (2) Procure funding within KDHE or through grant Jamey Kendall, Genetics Coordinator, KDHE (Note: Ms. Kendall functions in this role majority of position’s duties are related to Newborn Screening) KDHE and Policymakers July 1, 2012