Question 8 In a show of hands, where participants could vote as many What is the best times as they wanted: way to find out about your 3 participants wanted email communication communication 6 participants wanted face-to-face support and No-one wanted a letter if was not accessible information Everyone wanted a letter if it was accessible needs? No-one wanted online communication 8 participants wanted telephone communication 5 participants wanted text communication 1 participant did not mind what method of communication Question 9 needs to be a national database, but we want to agree “There What should that our information can be shared” services do to and GPs should know you and so should the “Hospitals make sure that primary care professionals working with you” you get bracelet identifying that you have learning disabilities could “A communication make people vulnerable” support and like the ones [bracelets] where there is a small barrel and “I accessible issues are covered up” information passports are good they need to be used more” “Health – quickly? should take more responsibility for passing information “GPs on” is a balance between sharing information and labelling us” should be trained in making information accessible; this “ALL small thing would make a huge change” GP’s, hospital and receptionists should all work “The together so that they have the same information. That does not happen at the moment” should speak to you regularly, check in with you and “They make sure you understand” should send easy read information using pictures, easy “They words and in big print before your appointment so you have time to look at it beforehand. Then you will be ready for your appointment” should be easy read leaflets readily available about “There our conditions. That should be across all health services” could be on the GP computer, so to not waste “Leaflets paper. But the GP needs to know about them so they can print them out when they see you” need to go through the information with you and take “They time. They should give you double appointments” needs to be more training to get staff to understand “There about not using jargon and being clear” Question 10 No responses. Is there anything else we should think about to find out about your information and communication support needs?
Question 8 What is the best way to find out about your communication support and information needs? In a show of hands, where participants could vote as many times as they wanted: 3 participants wanted email communication 6 participants wanted face-to-face No-one wanted a letter if was not accessible Everyone wanted a letter if it was accessible No-one wanted online communication 8 participants wanted telephone communication 5 participants wanted text communication 1 participant did not mind what method of communication Question 9 What should services do to make sure that you get communication support and accessible information quickly? “There needs to be a national database, but we want to agree that our information can be shared” “Hospitals and GPs should know you and so should the primary care professionals working with you” “A bracelet identifying that you have learning disabilities could make people vulnerable” “I like the ones [bracelets] where there is a small barrel and issues are covered up” “Health passports are good – they need to be used more” “GPs should take more responsibility for passing information on” is a balance between sharing information and labelling us” “ALL should be trained in making information accessible; this small thing would make a huge change” “The GP’s, hospital and receptionists should all work together so that they have the same information. That does not happen at the moment” “They should speak to you regularly, check in with you and make sure you understand” “They should send easy read information using pictures, easy words and in big print before your appointment so you have time to look at it beforehand. Then you will be ready for your appointment” “There should be easy read leaflets readily available about our conditions. That should be across all health services” “Leaflets could be on the GP computer, so to not waste paper. But the GP needs to know about them so they can print them out when they see you” “They need to go through the information with you and take time. They should give you double appointments” “There needs to be more training to get staff to understand about not using jargon and being clear” Question 10 Is there anything else we should think about to find out about your information and communication support needs? No responses.