Authors Form (text type) of Structure (ordering of Summary of the evidence Findings Quality (year), documentation information) of for content of information Appraisal* country documentation Quigley et al. Whole pathway Formalised process Patient diagnosis Fragmentation of *** 20143 proposed with key communication of care Name of responsible health Canada contacts clearly identified professional in hospital and Lack of common language For children in community community in expression care, acute hospital and Involvement of parents Lack of comprehensive care rehabilitation hospital plan settings Lack of accountability of information Development of structured communication plan needed Identify key contacts to ensure adequate follow-up Central contact person is essential to ensure family can see updates of plan Sonneveld et Mind the Gap Tool Completed by Health professional-related Lack of transition protocol * al. 201356 comprising 24 items adolescents, parents and characteristics: and transitional program Netherlands for health health professionals prior 78.9% If there are unrealistic professionals to adolescents’ move from expectations of health Lack of integrated treatment paediatric to adult care professionals providing adult protocol for child and adult settings care care 66.6% For children with juvenile If providers from child and Lack of guidelines or rheumatoid arthritis (JRA), adult care know each other standards for adolescents neuromuscular disorder well enough with chronic illnesses 61.1% with chronic ventilation Availability of providers with Lack of coordination (NMD), or type 1 diabetes specialised knowledge between child and adult care 52.6%
Authors (year), country Form (text type) of documentation Structure (ordering of information) of documentation Summary of the evidence for content of information Findings Quality Appraisal* Quigley et al. 20143 Canada Whole pathway Formalised process proposed with key contacts clearly identified For children in community care, acute hospital and rehabilitation hospital settings Patient diagnosis Name of responsible health professional in hospital and community Involvement of parents Fragmentation of communication of care Lack of common language in expression Lack of comprehensive care plan Lack of accountability of information Development of structured communication plan needed Identify key contacts to ensure adequate follow-up Central contact person is essential to ensure family can see updates of plan *** Sonneveld et al. 201356 Netherlands Mind the Gap Tool comprising 24 items for health professionals Completed by adolescents, parents and health professionals prior to adolescents’ move from paediatric to adult care settings For children with juvenile rheumatoid arthritis (JRA), neuromuscular disorder with chronic ventilation (NMD), or type 1 diabetes Health professional-related characteristics: If there are unrealistic expectations of health professionals providing adult care If providers from child and adult care know each other well enough Availability of providers with specialised knowledge Lack of transition protocol and transitional program 78.9% Lack of integrated treatment protocol for child and adult care 66.6% Lack of guidelines or standards for adolescents with chronic illnesses 61.1% Lack of coordination between child and adult care 52.6% *