decision-making capability and therefore provides for different categories of interveners to assist a person in maximising his or her capacity. The Act thus provides for three types of decision-making support options to respond to the range of support needs that people may have in relation to decision-making capacity. a person may appoint a decision-making assistant Assisted decision-making: – typically a family member or carer through a formal decision-making assistance – agreement to support him/her to access information or to understand, make and express decisions; Co-decision-making: a person can appoint a trusted family member or friend as a to make decisions jointly with him or her under a co-decision-making agreement; Decision-making representative: for the small minority of people who are not able to make decisions even with help, the Act provides for the Circuit Court to appoint a decision-making representative. Points There is a need for greater clarity about access by private health and social care providers, e.g., private nursing homes to IHI information and how this should be used; It is essential that processes are in place for the safe and secure electronic transfer of data the protocols for transferring data from the Public Service Identity Register – will be particularly important in this regard; Any statistical data or case evidence about people being put into the public domain for research, policy development or monitoring and evaluation purposes should at all times be presented anonymously and not traceable to any individual or group; The ongoing review of processes and procedures in respect of protecting privacy is crucial, particularly if any changes are introduced to the usage of the IHI register.
decision-making capability and therefore provides for different categories of interveners to assist a person in maximising his or her capacity. The Act thus provides for three types of decision-making support options to respond to the range of support needs that people may have in relation to decision-making capacity. Assisted decision-making: a person may appoint a decision-making assistant – typically a family member or carer – through a formal decision-making assistance agreement to support him/her to access information or to understand, make and express decisions; Co-decision-making: a person can appoint a trusted family member or friend as a to make decisions jointly with him or her under a co-decision-making agreement; Decision-making representative: for the small minority of people who are not able to make decisions even with help, the Act provides for the Circuit Court to appoint a decision-making representative. Points There is a need for greater clarity about access by private health and social care providers, e.g., private nursing homes to IHI information and how this should be used; It is essential that processes are in place for the safe and secure electronic transfer of data – the protocols for transferring data from the Public Service Identity Register will be particularly important in this regard; Any statistical data or case evidence about people being put into the public domain for research, policy development or monitoring and evaluation purposes should at all times be presented anonymously and not traceable to any individual or group; The ongoing review of processes and procedures in respect of protecting privacy is crucial, particularly if any changes are introduced to the usage of the IHI register.