Confidentiality names will not be included in any of the project write up, each respondent will be given a Patients’ code which corresponds to the time they were interviewed so I can identify who they are; but no one else can. Computer stored data will be password protected and files will not be left patients’ unattended. In Uganda adherence to treatment and hospitalization are two potential issues of public health concern, it will be discussed beforehand with the participant that the researcher will be obliged to discuss with the participants practitioner any disclosure of sensitive information detrimental to public health practice and or harmful to the patient. The joint MSF/ MoH programme in Kitgum is an approved pilot programme in the country and MoH staff are kept informed of programme performance, patients adherence and the fact that most patients are treated at home. Social Value This project has a number of potential benefits. Project Level benefits: This home based programme has not had any formal assessment of patient and family views of the service. This is likely to provide valuable information that may help improve the functioning of the programme. Community Level Benefits: It is currently known what community views of MDR TB and community management of MDR TB are. This study could help provide important information to provide to community leaders and key stakeholders that will be helpful for future scale up of effective TB care. National Level Benefits: There is little evidence currently about the best model of care for MDR TB in Uganda. The NTLP is planning on a hospital based programme with 6-8 months of hospitalisation in a centralised hospital. In making their final decision about how to structure the NTLP MDR TB programme research into patient and family acceptance of a community based model of care including home based care could be helpful and has been requested by the NTLP. Potential Risks It is perceived that MDR-TB patients face stigma, both externally enacted by members of the community and their families; as well as internally experienced accompanied with strong feelings of guilt and fears of infecting others around them. Feelings of spoiled identity may be experienced by the patients, particularly with side effects of some drugs changing skin colour or changing personality,
Confidentiality Patients’ names will not be included in any of the project write up, each respondent will be given a code which corresponds to the time they were interviewed so I can identify who they are; but no one else can. Computer stored data will be password protected and patients’ files will not be left unattended. In Uganda adherence to treatment and hospitalization are two potential issues of public health concern, it will be discussed beforehand with the participant that the researcher will be obliged to discuss with the participants practitioner any disclosure of sensitive information detrimental to public health practice and or harmful to the patient. The joint MSF/ MoH programme in Kitgum is an approved pilot programme in the country and MoH staff are kept informed of programme performance, patients adherence and the fact that most patients are treated at home. Social Value This project has a number of potential benefits. Project Level benefits: This home based programme has not had any formal assessment of patient and family views of the service. This is likely to provide valuable information that may help improve the functioning of the programme. Community Level Benefits: It is currently known what community views of MDR TB and community management of MDR TB are. This study could help provide important information to provide to community leaders and key stakeholders that will be helpful for future scale up of effective TB care. National Level Benefits: There is little evidence currently about the best model of care for MDR TB in Uganda. The NTLP is planning on a hospital based programme with 6-8 months of hospitalisation in a centralised hospital. In making their final decision about how to structure the NTLP MDR TB programme research into patient and family acceptance of a community based model of care including home based care could be helpful and has been requested by the NTLP. Potential Risks It is perceived that MDR-TB patients face stigma, both externally enacted by members of the community and their families; as well as internally experienced accompanied with strong feelings of guilt and fears of infecting others around them. Feelings of spoiled identity may be experienced by the patients, particularly with side effects of some drugs changing skin colour or changing personality,