4.3 To ensure babies have been referred and 4.3.1 All families and babies diagnosed with PCHI are An appointment with an otolaryngologist have the opportunity to access, otologic, referred for appropriate medical evaluation. /paediatrician with expertise in paediatric ophthalmic and developmental 4.3.2 All babies fitted with hearing aids must be hearing loss should be made within two assessment and the opportunity for examined by a otolaryngologist or paediatrician to weeks of confirmation of hearing loss. aetiological investigation including exclude any medical contraindications to hearing aid Following confirmation of hearing loss, all genetic advice/counselling. fitting. babies are referred for otological and other 4.3.3 All families are offered appropriate appropriate medical evaluation so that a support/counselling for managing their child’s medical management plan including other hearing loss. interventions, can be developed by three 4.3.4 All babies with hearing loss are reviewed by an ENT months of age in collaboration with the surgeon, developmental paediatrician, family. ophthalmologist, audiologist and are given the All families are provided with a written opportunity to meet with a clinical geneticist if explanation of the implications of the required. outcomes of aetiological investigation. There is evidence of processes for reviewing and correlating clinical, neurological, audiology (etc) findings for hearing loss that has been detected as a result of screening. >97% of babies are seen within targeted timeframes. 5. Early Intervention and Management Objective Standard Target Performance Indicator 5.1 Early intervention, support and advocacy 5.1.1 Services provide and source accurate, unbiased >97% of families are provided with a range of services are family centred. information for families to support decisions options regarding amplification technology, regarding technology and early intervention communication and intervention within six strategies to promote and enhance communication weeks of diagnosis. options. Families (particularly in rural and remote areas) are provided with information on eligibility and
4.3 To ensure babies have been referred and have the opportunity to access, otologic, ophthalmic and developmental assessment and the opportunity for aetiological investigation including genetic advice/counselling. 4.3.1 All families and babies diagnosed with PCHI are referred for appropriate medical evaluation. 4.3.2 All babies fitted with hearing aids must be examined by a otolaryngologist or paediatrician to exclude any medical contraindications to hearing aid fitting. 4.3.3 All families are offered appropriate support/counselling for managing their child’s hearing loss. 4.3.4 All babies with hearing loss are reviewed by an ENT surgeon, developmental paediatrician, ophthalmologist, audiologist and are given the opportunity to meet with a clinical geneticist if required. An appointment with an otolaryngologist /paediatrician with expertise in paediatric hearing loss should be made within two weeks of confirmation of hearing loss. Following confirmation of hearing loss, all babies are referred for otological and other appropriate medical evaluation so that a medical management plan including other interventions, can be developed by three months of age in collaboration with the family. All families are provided with a written explanation of the implications of the outcomes of aetiological investigation. There is evidence of processes for reviewing and correlating clinical, neurological, audiology (etc) findings for hearing loss that has been detected as a result of screening. >97% of babies are seen within targeted timeframes. 5. Early Intervention and Management Objective Standard Target Performance Indicator 5.1 Early intervention, support and advocacy services are family centred. 5.1.1 Services provide and source accurate, unbiased information for families to support decisions regarding technology and early intervention strategies to promote and enhance communication options. >97% of families are provided with a range of options regarding amplification technology, communication and intervention within six weeks of diagnosis. Families (particularly in rural and remote areas) are provided with information on eligibility and