Australian Capital Territory organisations ACT Health Government ACT NA NA The ACT Health Population Division conducts population surveys, for example, Health and Wellbeing of Older Persons in the ACT, that include some self-reported health status and psychological distress items. It collaborates with local universities, for example the Australian National University, in reports such as ‘Mental Health and Wellbeing in the ACT’ (Morris et al. 2011), which included a variety of self-reported health status and PROM style measures (e.g. depression, coping styles, resilience). ACT Health supports activity in trauma and orthopaedic research and the Trauma and Orthopaedic Research Unit (TORU), which is founded within the Australian National University Medical School. The iFracture data collection system is supporting the longitudinal measurement of patient-reported outcomes for fracture trauma cases presenting to the Canberra Hospital. Centre for Academic ACT NA Researchers from this The main focus of the Centre for Advances in Epidemiology and Advances in institution / Centre haves used generic IT has been the creation of a sustainable growth model for Epidemiology research (e.g. SF-36), symptom and knowledge generation in healthcare. Known as Turning Research and centre disease-specific proms (vary into Practice (TRIP), the program has a three-tier approach Information by disease) in research incorporating: 1) the research process; 2) generation of Technology applications and has predictive models to improve individual patient outcomes; and (CAEIT) developed a real time 3) a focus on efficient service delivery using an evidence-based system for PROMs data model. An IT model developed by CAEIT was developed into a collection. commercial IT system called DiscoverQuick that is useful for monitoring patient health outcomes in routine practice and in real time. International organisations International International NA NA ICHOM has developed a number of standardised data sets for Consortium health outcomes measurement across a range of diseases ( e.g. for Health prostate cancer, dementia), which include various PROMs. Outcomes ICHOM aims to promote 'value based health care' (which implies Measurement the use of PROMs) and also aims to promote international
Australian Capital Territory organisations ACT Health Government ACT NA NA The ACT Health Population Division conducts population surveys, for example, Health and Wellbeing of Older Persons in the ACT, that include some self-reported health status and psychological distress items. It collaborates with local universities, for example the Australian National University, in reports such as ‘Mental Health and Wellbeing in the ACT’ (Morris et al. 2011), which included a variety of self-reported health status and PROM style measures (e.g. depression, coping styles, resilience). ACT Health supports activity in trauma and orthopaedic research and the Trauma and Orthopaedic Research Unit (TORU), which is founded within the Australian National University Medical School. The iFracture data collection system is supporting the longitudinal measurement of patient-reported outcomes for fracture trauma cases presenting to the Canberra Hospital. Centre for Advances in Epidemiology and Information Technology (CAEIT) Academic institution / research centre ACT NA Researchers from this Centre haves used generic (e.g. SF-36), symptom and disease-specific proms (vary by disease) in research applications and has developed a real time system for PROMs data collection. The main focus of the Centre for Advances in Epidemiology and IT has been the creation of a sustainable growth model for knowledge generation in healthcare. Known as Turning Research into Practice (TRIP), the program has a three-tier approach incorporating: 1) the research process; 2) generation of predictive models to improve individual patient outcomes; and 3) a focus on efficient service delivery using an evidence-based model. An IT model developed by CAEIT was developed into a commercial IT system called DiscoverQuick that is useful for monitoring patient health outcomes in routine practice and in real time. International organisations International Consortium for Health Outcomes Measurement International NA NA ICHOM has developed a number of standardised data sets for health outcomes measurement across a range of diseases ( e.g. prostate cancer, dementia), which include various PROMs. ICHOM aims to promote 'value based health care' (which implies the use of PROMs) and also aims to promote international