How to deal with diagnosis of a rare chromosome disorder in a child?
Question: My seven-month-old son has been diagnosed with a rare chromosome disorder. He is developmentally delayed and faces many health issues. I'm feeling very overloaded with the diagnosis, and I don't know where to start. Can you offer some advice on how to cope with this situation and what steps to take next?

Answer: I'm sorry to hear about the diagnosis of your son. I can understand how overwhelming this news can be
Question: My husband and I have recently received devastating news: our 10 month old son has been diagnosed with a rare chromosome disorder. We are shattered, grieving for our perfect child who was suddenly taken away from us. We are not sure if we are ready or strong enough to deal with all the unknowns and the complex medical situations he might face. How can we prepare ourselves, not only to understand and accept but also to cope with the challenges that