How to deal with diagnosis of a rare chromosome disorder in a child?
Question: My husband and I have recently received devastating news: our 10 month old son has been diagnosed with a rare chromosome disorder. We are shattered, grieving for our perfect child who was suddenly taken away from us. We are not sure if we are ready or strong enough to deal with all the unknowns and the complex medical situations he might face. How can we prepare ourselves, not only to understand and accept but also to cope with the challenges that
What to do when child is suffering from an unknown disease? These are the commonly asked questions whenever a child gets diagnosed with a rare chromosome disorder. Here are some suggestions for parents and caregivers, based on my personal experience and resources.

First, it is important to accept the diagnosis and understand that it is just a part of your child's unique identity. Remember, your child is still the same person they were before the diagnosis, and they deserve love, respect, and