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## Supporting pediatric transplant patients and their families.
Our Mission
Tiny Transplant Titans is a 501(c)(3) that provides support to children who have received life-saving transplants, those waiting for their gift of life, those needing a transplant in the future - and their families! We also strive to raise awareness for organ donation.
#### Tiny Transplant Titans
©2024 Tiny Transplant Titans. Tiny Transplant Titans Inc is a 501(c)(3) non-profit organization. Tax ID: 92-1971254.
## Our Story
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Our son Stephen was born in October, 2021. During the first few days of his life the doctors knew something was wrong due to his high bilirubin levels. At just over a month old, he was diagnosed with Biliary Atresia and had his first life-saving surgery, the Kasai procedure.
Biliary atresia is a rare disease of the liver and bile ducts that occurs in 1 in 15,000 infants. Biliary atresia is an absence or destruction of the bile ducts causing bile flow from the liver to the gallbladder to be blocked. This leads to scarring of the liver (cirrhosis), and eventually liver failure. Currently, there is no known cure for biliary atresia and the only treatments are a Kasai procedure and liver transplant. The goal of the Kasai procedure is to prolong the need for a liver transplant, however most children's diagnosed with this disease will need a liver transplant at some point in life. Biliary Atresia is the leading cause of pediatric liver transplants.
Steve’s Kasai procedure was not successful and he is currently in need of a liver transplant. Steve began the transplant evaluation process in October 2022, just before his first birthday and is currently waiting for his gift of life.
We have had many hospital stays and know how hard they can be. We have felt the weight and emotion of going through the transplant process and waiting for your child to receive a life-saving gift. We know that transplant is not a cure and it is a lifelong journey with bumps along the way. Throughout this journey we were blessed with an amazing support system that has shown up for our family. Our son, our experience and our support system inspired us to start Tiny Transplant Titans. We hope to provide support to families going through the long road of pediatric transplant.
- Shannon and Steve
## FAQs
#### What do you do with the money raised?
Currently our core initiatives are inpatient care packages, transplant anniversary gifts, and raising awareness for organ donation. We are hoping to broaden our support to pediatric transplant families in the coming year.
#### Are donations tax deductible?
Yes, all donations are tax deductible. Tiny Transplant Titans Inc is a 501(c)(3) non-profit organization. Tax ID: 92-1971254.
#### What hospitals do you currently work with?
For our inpatient care packages we work with Boston Children’s Hospital but would love to expand to other hospitals that do pediatric transplants. If you would like to be the contact for a hospital we should expand to please contact us!
#### What is a Tiny Transplant Titan?
A Tiny Transplant Titan is a child (under 18) who has undergone a transplant or is waiting for their gift of life. These kids are tiny but so mighty!!!
#### How can I share my child’s story and connect?
First of all thank you! We love hearing other children’s and family’s stories and they are so important to raise awareness for organ donation. To connect with us you can go to the  on this site, send us an email at info@tinytransplanttitans.com, or follow us on social media.
#### How can I help and get involved?
There are so many ways to help! You can help monetarily by donating, purchasing supplies for our care packages from our Amazon store, or buying Tiny Transplant Titans merchandise. Other ways to help are by donating raffles prizes for fundraisers, hosting a fundraiser to benefit TTT, and spreading the word about our organization and mission. To connect with us you can go to the  on this site, or send us an email at info@tinytransplanttitans.com.
Outside of donating one of the biggest ways to help is by registering to be an organ donor and raising awareness for organ donation.
#### Do you have sponsorship opportunities?
Yes, we would love to work with your business or organization. These partnerships are an integral part of our success. For sponsorship opportunities email info@tinytransplanttitans.com.
## Golf Tournament
### 3rd Annual 3A Showdown Golf Tournament
Friday, October 18, 2024,
Registration opens at 7:30am, Shotgun start at 9:00am
Brookmeadow Country Club - Canton, MA
**More details to come!!**
### 2nd Annual 3A Showdown Golf Tournament
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Friday, October 13, 2023, 7:30am
## Falmouth Road Race
**2024 ASICS Falmouth Road Race**
Sunday, August 18, 2024
Our team is full for 2024. Support our team of 10+ runners !
Have your own bib and want to run on Team Tiny Transplant Titans?Email us at info@tinytransplanttitans.org to join our team