So sorry for your loss. Thank you for sharing your experience.<p>I work as a developer at a large-ish (&gt;20,000 employees) healthcare system. Our CIO carries around a thick 2-inch binder from his infant son&#x27;s medical treatments back in the mid-90&#x27;s (his son died at around a year of age). The binder is meticulously organized and includes sections for various departments, complementary organizations (long-term care hospital, specialists, etc.), etc. It was their only way of coordinating care at that time. That experience led to the push in our system for electronic records back in the early 2000&#x27;s, and we&#x27;re continuing to pursue standardization and interoperability to make records accessible across departmental and organizational boundaries.<p>To every healthcare organization—for&#x2F;non-profit—that sees interop as a threat to your ability to sell licenses and fill beds, fuck you. Your customer&#x27;s lives are much more important than your supposed competitive advantages—and, in the long term, the companies that share data will be the winners.