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Prevalance of Scleroderma: Estimates for the number of people in the United States with systemic sclerosis range from 40,000 to 165,000. By contrast, a survey that included all scleroderma-related disorders, including Raynaud's phenomenon, suggested a number between 250,000 and 992,500.bout prevalence and incidence statistics: The term 'prevalence' of Scleroderma usually refers to the estimated population of people who are managing Scleroderma at any given time.
Systemic Sclerosis (Systemic Scleroderma). Systemic scleroderma is also known as systemic sclerosis (SSc). There are several types, Limited/CREST and Diffuse. These types can affect the entire body, including the skin, blood vessels, and/or internal organs.ystemic Sclerosis (Scleroderma): Prognosis and Mortality. Now that the full range of types and severity of scleroderma are being recognized and diagnosed, there is increasing awareness that many people have a milder type of illness with a much rosier longterm prognosis. ISN.