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On Sunday, five years to the day after his memorable play became a symbol of a devastated community's will to carry on, Gleason, 34, went public with his diagnosis of amyotrophic lateral sclerosis, also known as Lou Gehrig's disease.
ALS Patient Lives Long Enough to See His Journey on Film. VIDEO: Steve Dezember, 31, was diagnosed with Lou Gehrig's disease in 2011. For Steve and Hope Dezember, life really did change in the blink of an eye. Hope was working as a mental health therapist when she started dating Steve Dezember, an engineer recruiter, after connecting through mutual friends. It was really sweet, our eyes met and it was instant, Hope, 29, told ABC News today.