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What is the average age of death for Huntington's disease? The median timeframe of survival for someone with adult-onset Huntington's (or Huntington) disease (HD) is 15-18 years after symptoms begin. The average age of death for a person with HD is 54-55 years of age. Some individuals live longer, especially if symptoms do not begin until a later age. Juvenile HD, which is rarer than adult-onset HD, has a rapid disease progression once symptoms begin. Death typically occurs in people with JHD within 10 years of the start of symptoms.
The disease may progress more slowly in people who develop HD later in life and their symptoms may be less severe. Additionally, a very small percentage of people develop the disease before they turn 20 or even when they are children. This is called juvenile onset Huntington's Disease. Seeing a doctor who is experienced in the diagnosis and treatment of neurological disorders is the best way to resolve questions about onset or any other aspect of Huntington's Disease. [This page is based on the Association's publication Huntington's Disease.