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Ocea Varney, now 18 months, was born with her tongue stuck poking out due to a rare genetic condition. Ocea suffers from Beckwith Wiedemann Syndrome (BWS), a congential overgrowth disorder which affects one in 13,700 newborns worldwide. She is pictured with mother Melanie, 28.
Pfeiffer syndrome. a hereditary autosomal dominant disorder characterized by conical deformity of the head, extra fingers and toes, webbed fingers and toes, and broad short thumbs and big toes. Called also acrocephalosyndactyly type V and acrocephalopolysyndactyly type I.