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Ocea Varney, now 18 months, was born with her tongue stuck poking out due to a rare genetic condition. Ocea suffers from Beckwith Wiedemann Syndrome (BWS), a congential overgrowth disorder which affects one in 13,700 newborns worldwide. She is pictured with mother Melanie, 28.
In this Article. In this Article. Duane syndrome (DS) is a rare eye disorder some people are born with. The muscles and nerves around your eye don't work well, and that keeps it from moving as it should. The disorder is also known as Duane's syndrome, Duane retraction syndrome, or Stilling-Turk syndrome.