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Ocea Varney, now 18 months, was born with her tongue stuck poking out due to a rare genetic condition. Ocea suffers from Beckwith Wiedemann Syndrome (BWS), a congential overgrowth disorder which affects one in 13,700 newborns worldwide. She is pictured with mother Melanie, 28.
Frequently, with a generalized tonic-clonic seizure, tongue biting occurs. However, seizures can be very quiet as in the case of frontal lobe epilepsy. Seizures are usually followed by a period of confusion, also known as a âpost-ictalâ state.