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Ocea Varney, now 18 months, was born with her tongue stuck poking out due to a rare genetic condition. Ocea suffers from Beckwith Wiedemann Syndrome (BWS), a congential overgrowth disorder which affects one in 13,700 newborns worldwide. She is pictured with mother Melanie, 28.
Could not subscribe, try again laterInvalid Email. A baby is seen poking its tongue out in an amazing ultrasound scan. But while the image may appear to capture a cheeky pose, Ocea Varney was unable to close her mouth after being born with a congenital defect which meant her tongue was enlarged.