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Ocea Varney, now 18 months, was born with her tongue stuck poking out due to a rare genetic condition. Ocea suffers from Beckwith Wiedemann Syndrome (BWS), a congential overgrowth disorder which affects one in 13,700 newborns worldwide. She is pictured with mother Melanie, 28.
urning mouth syndrome is a painful and. often frustrating condition. Some patients. compare it to having burned their mouth. with hot coffee. The burning sensation may affect the tongue, the roof of the mouth, the gums, the inside of the. cheeks and the back of the mouth or throat. The. condition sometimes is known as âburning tongue. (or lips) syndrome,â âscalded mouth syndrome,â. âglossodyniaâ and âstomatodynia.â. In addition to the burning sensation, other con-.