Dementia is a progressive, neurodegenerative disease. Currently, 850,000 people in the United Kingdom are living with dementia, and this figure will rise to over two million by 2051 (Alzheimer’s Society, 2014). A large proportion of the estimated 400,000 residents in UK care homes have dementia or another form of cognitive impairment (Care Quality Commission, 2010). Policy documents addressing dementia care are available in the UK and other countries including for example, USA and Australia (Ouwens, Wollersheim, Hermens, Hulscher, & Grol, 2005), but there is little attention to care at the end of life (Nakanishi et al., 2015).