The survey filled in by PO leaders intended to explore what patients deem to be of most value to them. The final survey included three groups of items/topics: The first set of questions were focusing on descriptive general characteristics of the POs (way of funding, number of payed and voluntary staff). The second group of items were related to POs perception on PPVs (aspects of care and their importance rated on a 5-point ordinal scale, fields for improvement in cancer care formulated as an open-ended question), while the third group contained open-ended questions on involvement of POs into decision making [involvement of patient representatives to health technology assessment (HTA)]. (For the actual questions, please refer to the headlines of the corresponding tables) POs were informed about the objectives of the survey, including the notion of presenting aggregated results in a scientific manuscript. As the survey was filled in by POs and only general policy questions were surveyed without collecting any clinical personal data, after legal consuelling no ethical approval was considered to be necessary for the study.