The objective of this research was (I) to identify PPVs in cancer care and treatment as indicated by POs surveyed on behalf of their patient population; (II) to determine how these PPVs are captured in the guidelines on both a micro and macro level and finally (III) to review how patient representation in clinical and policy decisions are facilitated by the guidelines. Authors are not aware of studies on PPVs from wide array of Patient Organizations (POs) from countries on different continents.