A Socio-ecological Approach for Improving Self-management in Adolescents With SCD
The goal of this clinical trial is to evaluate the impact of SCThrive (a behavioral self-management intervention) on patient activation, self-management behaviors, daily functioning, and emergency room visits in 260 adolescents and young adults with sickle cell disease (SCD) ages 13-21 receiving care at 1 of 4 pediatric SCD clinics.

The main question[s]it aims to answer are:

Does SCThrive improve patient activation?
Does SCThrive improve self-management behaviors, daily functioning, and decrease emergency room visits?
Are any improvements maintained 3 months after treatment?

Participants will complete self-management related surveys before, after, and 3 months following their participation in an 8- week, virtual group intervention with an accompanying mobile app (SCThrive).

Researchers will compare outcomes for participants who receive SCThrive and participants who receive uniform standard care (SCHealthED which = standard of care plus SCD educational text messages) to see if there are differences in patient activation, self-management behaviors, daily functioning, and emergency room visits.
- EligibilityCriteria: Inclusion Criteria:  Patient of a participating SCD Clinic Confirmed diagnosis of SCD 13-21 years of age  Exclusion Criteria:  Another chronic disease (which would complicate measurement of patient activation) Non-English-speaking Cognitive or psychiatric disorder that the physician or study therapists believe would impair study participation. - HealthyVolunteers: No - Gender: All - MinimumAge: 13 Years - MaximumAge: 21 Years - StdAgeList: Child, Adult