Effect of Parental Attitude on Functional and Physical Level of Children With Cystic Fibrosis
Some parents may be more protective of children with CF due to concerns about worsening of the disease due to infection, which can affect their functional level. The goal of this observational study is to learn about the family's protective approach to the functioning and disease course of children with cystic fibrosis (CF) to determine whether there are possible negative effects. There will be an alternative viewpoint offered to clinicians regarding the management of CF with outputs of this study.
- EligibilityCriteria: Inclusion Criteria:  For a child  To be between 7-17 years old, Living with family or caregiver.  For the parent  Being the mother, father or other caregiver of the child, Voluntarily agreeing to participate in the study on behalf of both the child and oneself.  Exclusion Criteria:  For the child  Having cognitive impairment that would prevent participation in the study or being able to cooperate with the measurements and not being able to adapt, History of previous lung or liver transplantation, History of hospitalization within the last 1 month, Having a neurological or orthopedic comorbidity that affects mobility.  For the parent  Having cognitive impairment at a level that prevents participation in the study Not living in the same household with the child. - HealthyVolunteers: No - Gender: All - MinimumAge: 7 Years - MaximumAge: 17 Years - StdAgeList: Child - StudyPopulation: Children with cystic fibrosis and their parents who visited a private hospital's Pediatric Chest Diseases Outpatient Clinic made up the study's population. 37 parents of children with cystic fibrosis and their 37 offspring who match the inclusion and exclusion criteria and willingly consent to take part in the study will make up the sample. - SamplingMethod: Non-Probability Sample