A Decentralized Clinical Trial to Promote Evidence-Based Care for Underserved Patients With Neurofibromatosis 1
The goal of this fully decentralized, randomized controlled trial is to compare the efficacy of two educational interventions for individuals with Neurofibromatosis 1 (NF1). The primary objective of the study is to determine which intervention leads to higher rates of evidenced-based health screenings for NF1 patients in primary care settings.

Adults with NF1 and parents/guardians of children with NF1 from across the U.S. who do not go to a specialized NF clinic and who have an upcoming annual wellness visits scheduled with a primary care provider (PCP) are eligible to enroll in the study.
- EligibilityCriteria: Adult Inclusion Criteria:  Currently lives in the United States (including Puerto Rico and other United States territories) Has a clinical diagnosis of neurofibromatosis 1 Does not attend an NF clinic within the Children's Tumor Foundation NF Clinic Network Has an in-person, well-person visit with a primary care provider scheduled within 3 months of their consent Speaks English or Spanish  Parent/Guardian of a Child with NF1 Inclusion Criteria:  Currently lives in the United States (including Puerto Rico and other United States territories) Cares for a child (age <18 years) with a clinical diagnosis of neurofibromatosis 1 Does not attend an NF clinic within the Children's Tumor Foundation NF Clinic Network Their child has an in-person, well-person visit with a primary care provider scheduled within 3 months of their consent Speaks English or Spanish  Exclusion Criteria:  Only one person per household may participate in the study Unwilling or unable to give informed consent - HealthyVolunteers: No - Gender: All - MinimumAge: 18 Years - StdAgeList: Adult, Older Adult