Projects funded either largely or partially by pharmaceutical companies to inform drug target discovery include FinnGen (partly led by Mark Daly), Regeneron/Geisinger, and Genomics Medicine Ireland. In April 2019, Stefansson was named the first president of the Nordic Society of Human Genetics and Precision Medicine. The society was formed to create a pan-Nordic framework for human genetics research and the application of genomics to healthcare across the region, with the aim of generating and integrating genomic and healthcare data from Iceland, Norway, Sweden, Denmark, Finland and Estonia. Stefansson has received some of the highest honors in biomedical research and genetics, including the Anders Jahre Award, the William Allan Award, and the Hans Krebs Medal. His work has been recognized by patient and research organizations such as the American Alzheimer's Society and by major international publications and bodies including Time,  Newsweek,  Forbes,  BusinessWeek  and the World Economic Forum. He has also received Iceland's highest honor, the Order of the Falcon. In 2019, he was elected a foreign associate of the US National Academy of Sciences, and received the International KFJ Award from Rigshospitalet, one of the oldest and most prestigious medical institutions in Denmark. In June 2012, his daughter, Sólveig "Sóla" Káradóttir, married Dhani Harrison, son of the late George Harrison and his wife, Olivia Harrison. They separated in 2016. Stefansson is the model for professor Lárus Jóhannsson in "Dauðans óvissi tími" by Þráinn Bertelsson and the principal villain of Óttar M. Norðfjörð's satirical 2007 book "Jón Ásgeir & afmælisveislan", in which he creates a female version of Davíð Oddsson from a sample of Davíð's hair. He is the model for Hrólfur Zóphanías Magnússon, director of the company CoDex, in "CoDex 1962" by Sjón. In his 2002 novel "Jar City", Arnaldur Indridason mixes critical and humorous references to deCODE and Stefansson by creating a vaguely sinister genetics institute based in Reykjavik headed by a scrupulously polite, petite brunette named Karitas. In the 2006 film version directed by Baltasar Kormakur, Stefansson (who is 6'5" and with gray hair) plays himself, adding a moment of "vérité" but losing the satirical irony of his namesake.