<https://beyondbatten.org/#website>
<http://schema.org/description>
"Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year."
<https://beyondbatten.org/family-stories/my-sons-time-is-running-out-due-to-a-rare-disease-the-fda-needs-to-add-more-clinical-trial-flexibility/>