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"Angela, yes I am doing the diamox - as Dr. Driscol recommended.  I have found that it helps the head pressure that I have and my eyes don't hurt as bad.  I'm still not sure that it has really helped my POTS that much - but, it is supposed to help more with time.  If it is true what is thought with EDS/POTS/MCAS - then the pressure relief that the brain should have will take time.  I'm still in a trial run with it.  Not ready to give it up yet.  I did have to drop it down to only once a day and that is better for me.  My bp and hr are better - for sure. There you go Zap - your guessing about the propranalol must be right.  We have to listen to our bodies and figure out what is acceptable and what isn't.  Maybe, the way firewatcher is using her bb will help you too.  Although, I can't take melatinion - it makes me feel awful.  I get some really weird sensations with it and feel like I'm falling and my sleep isn't restful with it.  But, I know some who like it.  Some people have problems with it causing depression too.  My father tried it and during the day, his body would stay in a depressed state - instead of reviving up in the daytime.  He had to go off it.  Funny, how sometimes genetics play a big part in how we react to things. One of my docs is making me wait for test results too.  But, I figure no news, must be good news or they would have had me come in sooner.  She may be waiting to see if things improve before my next appt. as I'm to have some more test 2 weeks before I see her and she should have the results when I get there. Issie "
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