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"I completely relate to your frustration.  Once I get home from work which is hard enough to endure, i barely have enough energy to make my son dinner and just sit on the couch while he tries to convince me to play toddler activities.  He always asks me \"Mommy's sick?\"  I have 99% bad days....my boyfriend is embarrassed that I chose to ride a scooter at the grocery store.  I feel so bad for myself but also sad that my son and boyfriend suffer too becuase of this.  Really hard to stay positive....I'm not on all the meds you are because couldn't tolerate proponol (it made me feel stoned out of my mind!!!) even on half of a small dose I was prescribed.  I mostly take vitamins, gluten free and drink lotsa fluid, try not to stand up too long.  I would say in the last approx year I have had about max 2 weeks total of days I felt somewhat regular.  But then there is the knowing that the bad feelings will come back always in the back of my head.  Anyway, I drink a coctail in the evening and it makes me forget a little about feeling so icky.  From what I read from Issie's posts she has been going through issues for a long time so if she can have hope then I guess I should work on thinking more positive too. "
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