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"Personally, I think it's more a case of misdiagnosed autism and not that PANDAS is a treatable form of autism. Is there mention of autism throughout the literature of PANDAS? I know the Hornig paper mentions autism behaviors briefly, but I'm pretty sure most of it has been limited to OCD, TS and the other common co-morbidities. \n  \nI would love to see the numbers of \"autistic\" children who participated in the study (I put that in quotes because I believe it is a mis-diagnosis in these cases), and know the numbers of how many are no longer on the spectrum. I hope with all of my heart that all autistic families find relief. I firmly believe that a PANDAS child can look autistic.  I saw my daughter go from a perfectly normal, independent 6 year old to a child who couldn't do anything for herself-she even stopped talking.  I was afraid to say it at the time (because I'm not an expert and self-diagnosing is not my thing), but later after she recovered, I asked the school if they thought she looked autistic, and her teacher said yes.  I'm eternally grateful that this didn't happen at 15mos or 18mos...who knows what would have been her diagnosis? \n  \nBut to classify PANDAS as a treatable form of autism is just not supported in the literature, and crossing that line is going to cause a lot of physicians who are already sitting on the fence waiting for more \"evidence\" to pull back and have more reservations about PANDAS/PANS.  I'm just a lay person, and by no means an expert in medical ethics, but this feels wrong.  Especially if you put it in the context of how many autistic families are preyed upon by practitioners of unproven therapies. \n  \nPublish the proof before you make the claims, or put in on another page (not prominently displayed on the front) that many families anecdotally have found that their children were mis-diagnosed with autism but there have been no studies to prove it yet.  I have no problems with that.  PANDAS/PANS has come so far, and making claims that are too broad of what it encompasses without the proof, I'm afraid, may derail it. \n"
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