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"The reason, most probably, that your daughter's tTg levels are still elevated is because she has Type 1 diabetes also.  That alone, can keep levels high. \nTwelve is very young to trip for both diseases so she must be an extreme case.  Read my earlier post about checking the AGA IgA/IgG levels for dietary compliance. Doctors should not be using the tTg alone for dietary compliance because other autoimmune diseases, like Type 1 and Hashi's thyroid, can raise tTg levels.  They make this mistake all the time, causing patients to doubt their ability to follow the gluten-free diet successfully.  Too many people obsess about cc when she clearly has multiple autoimmune issues going on. Having 2 or more can really muck up blood work. I know this from personal experience. It took me nearly 3 years to get my tTg levels in the extremely low range because it took that long to heal. I follow a very strict gluten free diet and know I am not ingesting gluten. I have 4 autoimmune diseases myself so understand your problem. \n \nYour daughter's numbers are ever so slowly coming down, although obviously not enough. A year and a half is a short period of time for someone with Celiac and Type 1 to heal and have stellar blood work.  You are dealing with a group of people who regularly dish out pills so people will be \"cured\" in a few days..that is their mind set.  They don't understand the concept of it taking 3 or more years to heal from this. \n \nKeep up what you are doing and be patient.  It must be horribly difficult to deal with the dietary changes that these 2 diseases present with. I would suggest having them run the Anti-gliadin test also, not just the tTg. You need a full panel re-run, preferably, to get a clear picture of what's going on. That way, you won't get caught up with being obsessive about cc when it may not be an issue. Sounds like you are doing a good job with being stringent...it's hard for a 12 year old to not be able to eat out but I give you credit for taking those steps.  Good luck to you! \n"
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