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"I saw 3 heads of Dermatology at 3 different University Hospitals in 2 states. Also saw many internists....NO ONE could diagnose DH. Classic looking mosquito bite lesions, weep and ooze and burn at night. Never heal...sometimes blister sometimes welt sometimes scab...but never heal. Only diagnosis I got was neurotic excoriation. The excoriation pattern should be a clue that it is DH. Seeking medical diagnosis for 7 years did ...absolutely nothing but deplete my wallet. I had to find it here. Thank God for the people who write about their DH here...I would never have been diagnosed. Mine is on my face and the back of my neck. Sometimes on elbows and lower back. Only thing that helps is gluten free. Absolutely no trace gluten or I react for weeks. Also I MUST limit iodine...or the antibodies keep active. NO the Dr.'s are not knowledgeable about DH and I believe it is grossly and vastly underdiagnosed. Incidentally although all current literature says it is extremely rare, the original Dr. who wrote about this condition Dr. Duhring (It used to be called Duhring's Disease) said that it could occur on any part of the body including the face. He never learned the cause was gluten but he did document the tormented pain and itching associated with the lesions. Why they lost the fact that it can occur on the face is beyond me. What is also interesting is my son had it on his face at age 11. But all information said it was extremely rare in childhood and almost never occurs on the face. This deterred me from self-diagnosing the two of us for a long time. Only after several many Dr.'s couldn't figure it out and treated him for fungus repeatedly with no results...did I decide that it might be extremely rare....but it might be US! It was. The rash goes away unless any tiny trace gluten is accidentally consumed. To any who suspect DH, it is worth the try....don't listen to those who caution against self-diagnosing this. It is the only way some of us will get help. Read, Read, Read....because the Dr.'s aren't reading about this condition. \n"
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