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"IMHO what is rare is that your doctor knew what it was. I had DH from about age 5 or 6. At that time my Mom was told I had 'poison ivy in my blood stream' which led to some really nasty shots every year for 10 years. In adulthood the diagnosis of my DH varied from contact dermatitis to pickers acne and lots of other labels that I don't remember. I went to some of the best hospitals in my state and it took literally 40 years for me to finally get diagnosed correctly with celiac and DH.  \nYou got lucky that your doctors knew what it was. Most of us are not that fortunate. I see folks with DH lesions and the resulting distictive scars almost every day and I seriously doubt many of them have been actually diagnosed. \n"
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