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"I recognize and agree that DH is a side effect of celiac disease, I'm living proof of that. But where are the numbers to support 20-25% of us having DH? \n \nThis forum has 73 pages of posts. Doctors has 94 pages. Coping With has 724 pages of posts. I don't see the DH forum \"heaving\" with undiagnosed patients that would support a 20-25% experience rate, or that any great number of patients are going undiagnosed. \n \nAs a celiac and DH patient, I believe we need to be honest with ourselves and others about these conditions. It's the only way to be taken seriously by the medical community. To plant a suggestion that a DH patient stands a good chance of not being treated properly at a dermatologist I believe sends the wrong message to celiac patients. It sets up an expectation of failure before they even get to the doctor's office. \n \nWhen I went to the derm lab at OHSU, a major teaching hospital on the west coast, they knew what it was when I walked in the door. But the teaching doctor on duty had me hang around so he could round up a group of residents to see it first hand. Most of them had only seen pictures of it. A real live DH patient is that rare of an event for them. \n \nI'm truly trying to wrap my head around the 20-25% figure. First hand experience with this disease isn't supporting those kinds of numbers. \n"
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