<https://www.celiac.com/forums/topic/82133-how-many-have-dh-really/#comment->
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"Eatmeat4good:   \n\n \n\nAMEN!!!  None of us would recommend not trying to find a doc who can help, but you finally have to take the bull by the horns and take care of yourself.  If a person has suffered for years and is not getting answers what harm can a gluten free diet do?  It certainly can't hurt!  If I had just been more proactive I would have saved myself 8 years of itching, oozing, stinging, scarring, suffering in long sleeves and long pants in 100% heat, isolation, depression, shame, exhaustion from not sleeping due to the itching.  If I had gone gluten free 6 years ago, I would be in Hawaii right now rocking my bikini instead of locked up inside hiding my ruined skin.  Instead of asking how many really have DH, maybe the question should be how many of us are lucky enough to get a diagnosis early in the course of the disease?  I always wonder how many people are suffering in silence the way I have.   \n\n \n\nThank God for this forum.  I think we could give seminars to the doctors!  \n"
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