<https://www.celiac.com/forums/topic/82133-how-many-have-dh-really/#comment->
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"I think it is the luck of the draw finding a dermatologist that is experienced with DH.  I saw three of the top derms in my city and none of them snapped.  In desperation I ended up at a psychiatrist who sent me to a buddy of his, who is an allergist, for help.  The allergy doc figured it out.   \n \nI also think it has to do with the fact that they spend maybe 10 minutes with each patient in order to squeeze as many into the day as possible and sometimes they make a snap diagnosis.  How do I know this?  I work for docs, and I know the inner workings of a busy practice.  \n \nIn many cases the rash can mimic acne, eczema and other things and therefore is misdiagnosed initially.  In other cases (especially if you are a woman of a certain age) the initial diagnosis is that you are \"neurotic\" and the fact that you look like a pizza is somehow your fault.  Believe me I have heard it all. \n \nSo, in conclusion, I'd have to say that it is likely that there are many cases of DH that go undiagnosed for many years and in many cases are never diagnosed correctly.  For me it was 8 years of intense suffering before I got my answer.   \n \nI think this forum continuously encourages people to seek proper testing and a definitive diagnosis before embarking upon a life of gluten-free living.  But...there are times where folks just can't seem to hook up with the right doc due to location, lack of insurance, etc.  In those cases the forum is very helpful with tips and suggestions. I wish I had found it sooner.  If I had, I might have been able to nudge the derms in the right direction. It would have saved me years of misery. \n"
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