Ellie Libby, inspiration for Ellie's Haven, dies aged six
A Cornish girl who inspired plans for a holiday retreat for children with long-term and life-limiting illnesses has died.
Ellie Libby, six, whose condition led to the creation of the Ellie's Haven charity, died on Thursday, parents Nigel and Julie said.
Ellie was born with a rare genetic condition which required her to have round-the-clock care.
The charity hopes to raise £700,000 for the retreat and currently has £390,000.
Mr Libby said: "Ellie's memory will be preserved forever by Ellie's Haven and the special place for special children that it will create."
Ellie died 20 days before her seventh birthday, despite doctors saying she would not survive beyond the age of one.
She attended a special unit at Woodlands School in Plymouth.
Ellie's Haven continues to raise money and hopes to find land or a building in south-east Cornwall to use for the retreat.