This is a comprehensive, cross-sectional study conducted with approximately 40-60 individuals affected by ACC who may know the results of molecular profiling of their tumor.~Primary Objectives:~To identify the specific burdens faced by patients with ACC~To compare/contrast the burdens faced by patients with ACC at different disease stages (no evident disease, metastatic disease/watchful waiting, progressive disease)~Secondary Objectives:~To assess QoL implication in patients living with ACC (Adenoid Cystic Carcinoma)~To compare the burdens and QoL impacts in people living with ACC, with their tumors bearing Notch mutations or Notch Wild Type due to:~Rate of disease progression~Location of Metastases
This is a comprehensive, cross-sectional study conducted with approximately 40-60 individuals affected by ACC who may know the results of molecular profiling of their tumor.~Primary Objectives:~To identify the specific burdens faced by patients with ACC~To compare/contrast the burdens faced by patients with ACC at different disease stages (no evident disease, metastatic disease/watchful waiting, progressive disease)