This is a longitudinal, observational, non-randomized study enrolling up to 180 participants with DMD. Participants will be asked to participate in remote DVA at baseline, baseline retest, and Months 6, 12, 18 and 24 and/or the NSAA and/or PUL 2.0 at baseline, and Months 12 and 24 based on their ambulatory status. Participants will also complete electronic questionnaires on demographic information and report on treatment status and disorder progression (i.e., ambulation status, changes in medication). Participants will not be asked to stop or change any of their current treatments, and they are not prohibited from initiating treatments during this observational study.~This study will be remotely conducted (all visits and captures performed at home).
ARISE is a prospective and longitudinal clinical study of individuals with Duchenne Muscular Dystrophy (DMD) aimed at creating a database of functional motor abilities in this population to support validation efforts of the Duchenne Video Assessment (DVA).