WHO IS ELIGIBLE?~Children and adolescents with narcolepsy between the ages of 9-17 years~Diagnosis must be verified by a signed letter from physician in order to participate~Participants must be able to understand the purpose of the study~PARTICIPATION DETAILS~Upon enrollment participants will receive an email containing a link to complete HIPAA compliant online surveys about narcolepsy symptoms, quality of life, and daily function. Surveys should take no more than 30 minutes.~One week later, some participants will receive another email with a link to complete a 10-minute follow up survey
The purpose of this study is to test a pediatric narcolepsy patient reported outcomes tool to assess pediatric narcolepsy symptoms and their effect on daily functioning and quality of life. The goal is to develop a clinical survey that can improve the care of pediatric narcolepsy.