The course of the study is as follows:~Patient newly ventilated with NIV :~inclusion is done on the day of starting NIV. On the day of inclusion: Clinical examination, completion of the ALS-FRS score, completion of the SRI score.~For the caregiver: Completion of the Zarit Burden Inerview Reassessment of scores (SRI, Zarit-burden, ALS-FRS), at three-month and six-month follow-up~Patient dependent of NIV :~On the day of inclusion: Clinical examination, completion of the ALS-FRS score, completion of the SRI score.~For the caregiver: Completion of the Zarit Burden Inerview Reassessment of scores (SRI, Zarit-burden, ALS-FRS), at three-month follow-up
This study aims to measure the quality of life of ALS patients by the SRI questionnaire, in two distinct patient groups : Patient requiring initiation of NIV, and patients 24 hours dependent on NIV~This study also seeks to assess the quality of life of the caregivers with the Zarit Burden interview in those two populations