en cy cy en en en en en en en lt en en en de su cy de de cy de de az de es cy cy hu cy jbo cy en cy cy cy cy cy cy cy de cy en cy ca cy cy cy fr hbs_lat ca su en en en en fy en cy en cy ta cy cy en cy en en cy su cy da en en cy en cy cy cy cy en es en fr cs cy de cy cy en en fr en en cy cy cy en en en en en cy cy fy de de cy en da en cy en en en en en cy cy en en en en en en en en en en en en en en en en en en en lt en en en en en en en en en en en en su cy de de cy de de az de es cy cy hu cy jbo cy en cy cy cy cy cy cy cy de cy en cy ca cy cy cy fr hbs_lat ca su en en en en fy en cy en cy ta cy cy en cy en en en en en en en en en en en en en en en en en en en cy cy cy cy cy cy en ca cy en en en en nl en en cy cy fy de de cy cy en en da en cy en en en cy en en en en en en en en en en en en en en en en en en en en en en en en en en en en en en en en en pl cy en lt ast it en en en en en cy su en cy cy cy su hbs_lat cy it lt cy cy fy de de en en en en en fa en cy en en en en en cy cs
from retail volunteer to retail coordinator
a week of stellar support
the story of the nuns on the run
a beautiful addition to our memorial garden
thousands brave icy barry island sea
adroddiad arolygiaeth gofal iechyd Cymru
anfon yr arian rydych wedi ei godi
beth allwn ni ei gynnig
ffyrdd o weithio gyda ni
Handcrafted by Tŷ Hafan
dod o hyd i’ch siop leol
barry new years day dip
ride to the rugby
raffle tickets to sell
raffle terms and conditions
pay for a day
Show/Hide Left Push Menu
from retail volunteer to retail ...
a week of stellar support
the story of the nuns on the ...
by nuns on the run
a beautiful addition to our memorial ...
by Stone Sign Company
thousands brave icy barry island ...
molly and emily's story
rydym ni’n ei wneud
Cefnogaeth i weithwyr proffesiynol
adroddiad arolygiaeth gofal iechyd Cymru
anfon yr arian rydych wedi ei godi
beth allwn ni ei gynnig
ffyrdd o weithio gyda ni
Our local shops raise vital funds to help us provide unique care and support to life-limited children, young people and their families.
More about our shops
Take a look at our great range of items available to purchase from our online shop.
handcrafted by tŷ hafan
all tŷ hafan events
new years day dip
ride to the rugby
pay for a day
log in english %
home > newyddion > straeon teuluol > elain's story
Little Elain James was referred to Tŷ Hafan in January 2011. Elain was antenatally diagnosed with congenital heart disease, but it wasn’t until she was born that her family knew the full extent of her illness.
Tests revealed Elain had multiple, complicated heart conditions and a rare genetic disorder called 22q11.2 Deletion Syndrome. She also has a permanent feeding tube attached to her stomach.
Five-year-old Elain underwent heart surgery at just three months old and spent five months in hospital. Elain now has a good quality of life, but sadly, it is only a matter of time before her condition deteriorates.
Her mum, Bridget, said: “Her heart condition is repairable in many cases but unfortunately for us, not in hers. It’s very rare to have a child with a heart condition that can’t be fixed.”
Her heart condition is repairable in many cases but unfortunately for us, not in hers. It’s very rare to have a child with a heart condition that can’t be fixed.
Caring for a child like Elain can, and does, affect all aspects of family life.
Tŷ Hafan provides vital support for the whole family, including their baby daughter, Martha, offering short break care at the hospice, a listening ear, a shoulder to cry on and vital emotional and practical support for Bridget and Gareth, at their home in Aberystwyth.
Bridget said: “Elain loves Tŷ Hafan. They are a lifeline for us and help us create special memories which we’ll cherish forever.”
Elain adores relaxing in the charity’s hydrotherapy pool and its new desert-island themed adventure playground.
“We are able to relax at Tŷ Hafan and do the normal things that other families may take for granted. It can be difficult at times, but knowing that Tŷ Hafan is there for us is such a comfort," said Bridget.
Not knowing how long they have left with their beautiful daughter means Bridget, 30, and Gareth, 35, want to make every moment count. Bridget added: “We feel extremely lucky that Elain currently has such a great quality of life and is an extremely happy and content little girl.
"We would like to thank Tŷ Hafan for all they do for us and are so grateful they are with us on our journey."
Tŷ Hafan takes its support to wherever it is needed: at home,  at school or in hospital. We do this completely free of charge  for families in Wales that need us. Please help us continue to be there for life-limited children and their families, so they can make the most of the precious time they have left together.
Download a PDF copy of Elain's Story here
one off donation regular donation
anfon yr arian rydych wedi ei godi
Sut rydyn ni’n gofalu
join our team tŷ hafan mailing list
gyrfaoeddystafell newyddiondata Protectioncysylltu â ni
Tŷ Hafan - the hospice for children in Wales
Registered Head Office: Hayes Road, Sully, Penarth, CF64 5XX. A Charitable Company Limited by Guarantee. Registered in Wales: No: 3077406 Registered Charity No: 1047912
Mae'r wefan hon yn defnyddio cwcis er mwyn sicrhau eich bod yn cael y profiad gorau yn ddefnyddio ein gwefan. Drwy barhau tybiwn eich caniatâd i ddefnyddio'r cwcis fel y nodir yn ein polisi preifatrwydd a cwcis