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We love helping children learn to eat, not only because it helps the children, but because it completely transforms entire families. We’ve seen it over and over again. We thoroughly enjoy hearing about our families’ experiences.
Margarethe from Germany was born with a cleft palate and was put on nasogastric tube feeding. All weaning attempts failed, so Margarethe’s parents decided to bring her, and her brother, to the Eating School in Austria. Margarethe was four months old when she arrived; she learned to drink and had her first experiences with solid food. The tube stayed in Graz. Margarethe doesn’t need it anymore!
Theodore and his parents are from Canada. As a result of bottle refusal and failure to thrive, he had to have an NG feeding tube placed at the age of four months. When he was six months old, his parents enrolled him in the Netcoaching tube weaning program. From the very beginning of treatment, his oral aversion began to improve.
Mia has Down syndrome and was born with complex cardiac problems. At the age of six months, she received a nasogastric feeding tube, followed by a PEG feeding tube a few months later. As a result of the long-term tube feeding, she developed a tube dependency. The family decided to come to NoTube in March 2021 to join the Eating School.
Muna entered the world a few weeks early. Because of a tumour at the base of her tongue and a trachea tube, which complicated her intake of food, she was tube fed from the time she was born. At the beginning of Netcoaching, she was receiving nearly all of her nutrition via a PEG tube.
Edda came into the world with Down Syndrome and a heart defect. Because of the complexity of her medical situation, she was fed via a nasogastric tube right since her birth. Before starting Netcoaching, she would only accept small amounts of purées.
Moritz came into the world a little bit early and was born with a genetic syndrome. Because of his oesophageal atresia, he could not eat orally and had to be fed via a feeding tube directly after birth.
Samuel was born in the 28th week of pregnancy with a low birth weight. Because of his prematurity, he was fed for several weeks via a nasogastric feeding tube, from which he was successfully weaned. Unfortunately, he would only accept liquid nutrition and did not make the transition to purees or solid foods.
From the time she was born, Tereza received all of her nutritional needs via a feeding tube (first a nasogastric and then a PEG tube). She was born with a genetic disorder and a cleft pallet. As a result of the length of time she was tube fed, Tereza developed tube dependency, presenting with food refusal, persistent vomiting, and lack of appetite.
Hugo lives with his family in Germany. He is a “picky eater” and, prior to treatment, ate fewer than 5 different foods. Hugo had already undergone several therapies in his country before coming to NoTube. In August of 2020, when he was 5 years old, Hugo and his entire family participated in an Eating School in Graz. While there, Hugo learned to try new foods and to overcome his fears.
Anezka was born with a VACTERL syndrome that includes an esophageal atresia with tracheoesophageal fistula. She had her first surgery on the second day of her life, her esophagus was connected and the fistula closed.
In May 2021 we contacted NoTube and joined their Netcoaching program.
I think that everyone could benefit from accepting expert help. It isn’t just important but most often necessary. Even though I felt like I knew how one ‘should’ eat and what ‘healthy’ is, I could not have fought my eating disorder alone.