Patients are usually advised to eat soft foods for days, or sometimes weeks, to allow their jaw time to heal. They also require regular checkups with the doctor to monitor bone displacement, signs of infection, or other issues. Epidemiology
Maxillary hypoplasia is the most common secondary deformity that results from cleft lip and cleft palate. Because of the subjective nature of the diagnosis, the incidence of maxillary hypoplasia in people with cleft lip and palate varies between 15-50%. It is estimated that 25-50% of these patients require surgical intervention. Research directions
Research on the topic of maxillary hypoplasia is currently focused on the best way to treat and manage the disorder. A retrospective study was published in January of 2020 that evaluated the accuracy of virtual surgical planning-assisted management of maxillary hypoplasia. The study found that virtual surgical planning was an acceptable alternative to conventional planning and demonstrated to be very accurate. References


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Younger patients start out having unimpaired vision, but it starts to deteriorate at a young age and does so slowly. If vision is able to improve with the use of glasses, they should be worn to help facilitate concept development. Retinal degeneration cannot be ameliorated with glasses.The type of therapy needed for each individual varies, as not every affected individual would benefit from speech, physical, and occupational therapies. The type of therapy for each person is highly individualized. Individuals who have Cohen syndrome may also benefit from psychosocial support.Many people who have Cohen syndrome also have neutropenia which is a condition in which an individual has an abnormally low number of white blood cells called neutrophils. Having this condition may make these individuals susceptible to infections. Granulocyte-colony stimulating factor (G-CSF) is one possible treatment for neutropenia.Monitoring weight gain and growth is crucial, as well as annual ophthalmologic and hematologic evaluations and checkups. While there are treatments available to people with Cohen syndrome, there are no known cures for the disease. Prevalence
Over the past several years, there have been approximately 50 new cases worldwide. There are population groups with this condition in Australia, New Zealand, the UK and the US. It still seems to go undiagnosed, leaving the number of known cases less than 500. Etymology
The syndrome is named after Michael Cohen, William Pepper and Jaroslav Cervenka, who researched the illness. References
External links

GeneReview/NIH/UW entry on Cohen syndrome