"A survival rate of about 50% has been reported with supportive therapies. Cats with FPLV that survive the first 5 days of treatment usually recover, however the decrease in the cats white blood cells compromises its immune system, leaving it vulnerable to secondary infection.Lifelong immunity is thought to follow recovery from disease, and a carrier state of the disease has never been identified. Preventing transmission from infected cats
Quarantine/isolation
Cats with suspected or diagnosed FPLV should be kept in isolation. This non-enveloped virus is very resistant to environmental conditions and many disinfectants, is highly contagious, and rapidly accumulates in the environment due to high shedding of virus from affected animals. Strict protocols for containment – with isolation, minimal handling, and disinfection of all potential sources of fomites – is warranted. Recovered cats can still shed the virus for up to 6 weeks and can carry it on their body for prolonged periods. Vaccination
The practice of recommending and giving vaccines on a fixed schedule with annual boosters has been widely discarded. Current recommendations are based on the philosophy of vaccinating each cat no more frequently than necessary.
Important factors contributing toward caregiver burden include sleep disturbances, impulsive and hyperactive behavior, and communication difficulties ... Caregiver burden remained high throughout the life of the patient and, coupled with the physical burden of daily care, had a cumulative impact that generated significant psychological stress. "Additionally, the authors call for changing the narrative associated with Sanfilippo: "The panel agreed that the perceived aggressive behavior of the child may be better described as physical impulsiveness and is often misunderstood by the general public. Importantly, the lack of intentionality of the child’s behavior is recognized and shared by parents and panel members ... Parents may seek to protect their child from public scrutiny and avoid situations that many engender criticism of their parenting skills." Society and culture
The community of Sanfilippo families, foundations, scientists and researchers, and industry partners and collaborators around the world have dedicated November 16 as World Sanfilippo Awareness Day. World Sanfilippo Awareness Day is about spreading awareness and sparking conversations globally about Sanfilippo syndrome. This day of awareness is in honor of the children around the world living with Sanfilippo syndrome today, and those who have died. It also honors the families of the children with Sanfilippo syndrome. November 16, 2019, was the first year observing World Sanfilippo Awareness Day. See also
Mucopolysaccharidosis
Hurler syndrome (MPS I)
Hunter syndrome (MPS II)
Morquio syndrome (MPS IV)
List of neurological conditions and disorders

References
External links
 Media related to Sanfilippo syndrome at Wikimedia Commons