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Thankful for laptop computers and internet so I can communicate from my curled up, partially paralyzed position. This is one of those episodes that I am baffled by, as I don't have any idea what brought it on. Periodic Paralysis doesn't follow a textbook or play by any rules. Sometimes things go badly no matter how hard we try.

Edit Note, 12:40AM May 23: I knew if I thought hard enough, I would figure it out. This is a sodium episode. I've eaten caesar salads the last two days, and after researching, I've discovered that on top of the rest of my meals have put me somewhere in the 5000s for sodium mg in a two day period. Much too high for someone with HKPP. Add that to already being very weak from a short road trip, and you have a recipe for disaster. Salad, of all things. I can't win.

Posted by Gulf Coast Girl at 10:57 PM 1 comment: Labels: hkpp, periodic paralysis


Three Years Ago Today Three years ago today, I was training at the Bob Ross Art Workshop in beautiful New Smyrna Beach, Florida. How quickly things change.

I wasn't well...not by any means. I was on a walking cane, in horrible pain, and sick a lot, but fairly functional and not taking a minute for granted. I made every effort to work part time even though I was on a downhill spiral with permanent weakness due to Periodic Paralysis. At that time, I had no medical help...I appeared somewhat healthy with the exception of the cane, and I couldn't get anyone to listen to me or take my history with the condition seriously even though I had a documented diagnosis.

So, I carried on with life as best as I could. I returned to Florida for training so I could improve my craft and increase business. My students were wonderful, and I desperately didn't want to let them down. I was so happy to be doing what I loved, as seen by the cheesy grin on my face there.

I look at these photos now and wonder how on Earth I did it. It seems so long ago, it's hard to believe that I'm the same person and that is me standing there only 36 months ago. It almost doesn't seem real.

But it was real, and I miss it all so very much.

Posted by Gulf Coast Girl at 6:49 PM No comments: Labels: disability, history, hkpp, life story, loss, muscular dystrophy, remembering Welcome and thanks for visiting.