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Ice Bucket Challenge Progress

Medical Information Materials Living with ALS not only impacts a person’s daily living, but also factors into the appropriate medical treatment in an emergency situation or hospital stay. When providing care, health professionals and emergency personnel, like paramedics, will have many questions about a person’s medical condition. In these stressful situations, it is often helpful to have an organized set of information, which can help inform medical providers about specific issues and considerations.

These pages have been developed as communication and educational tools to help inform medical providers as well as provide pertinent insurance and family information. They may be used as a packet or as individual pages, based on individual preference and need.

The z-card has been developed to include those fundamentally important key considerations in an emergency situation. It can be printed and folded to fit easily in a wallet, pocket, car glove compartment etc.


Medical Information Packet
Key Medical Information Card
Eye Gaze Board

Key Medical Information Mobile App

The Key Medical Information app provides medical personnel with critical information to care for a person with ALS (amyotrophic lateral sclerosis) during an emergency. In addition to medical dos and don’ts, the app provides a communication board and emergency contact fields for users to reference. Click here to see a detailed layout of the app’s functionality. The app is available in Google Play and the Apple Store and is searchable by “Key Medical Information” or “The ALS Association”. If you have trouble locating the app, please use one of the below links, depending on your brand of phone:


Living with ALS Resource Guides

Resource Guides designed to inform and educate people about ALS in a comprehensive and easily understood format


Families and ALS Resource Guide

This resource guide is the result of many years of clinical social work practice and research with families, children, and youths affected by neurological illness.
