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Hepatitis C information in other languages: 中文 हिंदी ਪੰਜਾਬੀ Tiếng Việt عربى

My Health Record - You now have until 31 January 2019 to decide.

The opt-out deadline has now been extended again and a MHR will now automatically be created for you early next year unless you opt out by Thursday 31 January 2019. The following information is designed to help you decide if you want a My Health Record or not.

My Health Record (MHR) is an online system holding key health information for each Australian who has a Medicare number. It is operated by the Australian Government.

Health information such as your Medicare records, prescription history, test results, a summary of your health conditions and treatment, hospital discharge summaries, referral letters between health care practitioners, immunisations and allergies may all be uploaded to your MHR. This information may indicate if you have been tested for, diagnosed with or treated for hepatitis B, hepatitis C, HIV or a sexually transmissible infection. Some of this information will be automatically added to MHR when it is created. Other information is uploaded later by healthcare providers or you can add information yourself.

When your MHR is created, all information in it will be ‘open access’ allowing it to be viewed by healthcare staff including: GPs, specialists, clinic and hospital staff, pharmacists and pathology labs. You can choose to set limits on who has access to your information.





A MHR will still be set up for you automatically by the Government if you do nothing.
Alternatively, you can register now.

Some health information will automatically be uploaded to your MHR and be available to health professionals to read.

If you want to limit who sees your health information you must create a login through myGov and go into MHR to change the access codes.  Instructions are available on the MHR website. Go to: myhealthrecord.gov.au/for-you-your-family


Before 31 January 2019you can opt-out by visiting the opt-out section of the MHR website. You will need your Medicare number and ID such as a driver’s license.
Go to: myhealthrecord.gov.au/for-you-your-family/opt-out-my-health-record

After 31 January 2019your MHR will be created. If you don’t want one you can ask for your MHR to be destroyed. (Under current legislation it will be retained, but not accessible. Under proposed legislation it will be destroyed).

Go to: myhealthrecord.gov.au/for-you-your-family/howtos/cancel-my-record


It is important to understand how MHR works before deciding if you want one. If in doubt, opt out  - remembering that:

Go to: https://www.myhealthrecord.gov.au/for-you-your-family Help fight stigma and discrimination

If you are over 18 and living with or have previously had hep C in Australia, tell us about your experiences of living with hep C.

The Centre for Social Research in Health at UNSW Sydney is seeking people who have had or are currently living with hepatitis C to take part in a 15 minute online survey about experiences of hepatitis C, including treatment, community, wellbeing, stigma and discrimination.


World Hepatitis Day - Wrap up. poster from World hepatitis day 2018 - australia

This year the ‘WHY MISS OUT’ World Hepatitis Day campaign generated a high level of media coverage and social media engagement, with an extensive reach into the Australian population.

Hepatitis Australia would like to thank all involved, including our member organisations in each state and territory. As special thanks goes out to those individuals who shared their personal stories with the public.

Mainstream media articles reached approximately 6 million people across three waves. The first about declining access to the new cures for hepatitis C was issued on 24 July, ahead of World Hepatitis Day.  This was followed up by further coverage on World Hepatitis Day and the third focused on hepatitis B and aligned with the Australasian Viral Hepatitis Conference.

The social media campaign which commenced 2 July focused predominantly on Facebook with hundreds of thousands of individuals reached.

Visit the WHD website to find out how we did

Uptake of new hepatitis C treatment.

The Kirby Institute is releasing regular reports on the number of people initiating treatment for hepatitis C, using the new generation medicines.  The new generation medicines became available on the Pharmaceutical Benefits Scheme (PBS) from 1 March 2016. The reports show the estimated number of people commencing the new medicines generation medicines to treat and cure hepatitis C. The reports are available for download here or you can view the latest report by using the button below.

Read the latest report


Stigma stops the majority of people living with viral hepatitis enjoying the quality of life they deserve. From social exclusion and inferior healthcare to denial of employment opportunities and verbal assaults, stigma and discrimination stop people living with viral hepatitis from fulfilling their potential.

According to a new report published by the World Hepatitis Alliance, more than 90% of countries surveyed reported stigma and discrimination to some degree. The report entitled “Holding Governments Accountable: World Hepatitis Alliance Civil Society Survey Global Findings Report” found that stigma not only affects an individual’s ability to access diagnostics and treatment but also impacts their personal life, mental health and ability to work, learn and maintain relationships. Yet, despite this, very few respondents felt that their government was effectively addressing it on a national level, making stigma and discrimination a significant barrier to the elimination of viral hepatitis.

As a community, we must come together to challenge misconceptions and be empowered to act on violations.

Make a NOhep pledge - there's no excuse. The NOhep:NOEXCUSE pledge campaign is a year-round advocacy and awareness-raising activity calling on all people to stop making excuses and pledge simple actions to help eliminate viral hepatitis.  Click on the images below to make your pledge today.

Find out about a cure for hepatitis C


Peak health and community organisations congratulate the Australian Government’s new National BBV and STI Strategies

Media Release – 4 December 2018

Peak HIV, viral hepatitis, sexual health and community organisations today welcomed the release of five new National Blood Borne Virus (BBV) and Sexually Transmissible Infections (STI) Strategies by the Australian government.

The peak organisations were closely involved and consulted heavily in the development of the strategies, ensuring they provide a strong platform for a high quality and coordinated national response to BBVs and STIs over the coming five years.

Joint Select Committee on Constitutional Recognition Final Report to Parliament.

As a proud supporter of the Recognise Health initiative of the Lowitja Institute – which promotes understanding of the important link between health and wellbeing and constitutional recognition of Aboriginal and Torres Strait Islander people – Hepatitis Australia calls on all Australians to support recognition of Aboriginal and Torres Strait Islander peoples in the Australian Constitution.

My Health Record: Greg Hunt bows to pressure and extends opt-out deadline as website hits issues.

Read more news articles

Support us.

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Hepatitis Australia is a charity registered with the Australian Charities and Not-for-Profit Commission. Please contribute to our aim of a world without viral hepatitis by making a tax deductible donation. Find out more

Hepatitis Australia is a non-government, not-for-profit organisation that became incorporated in 1997. We do not provide services to individuals. To locate hepatitis services in your area visit the services page or call the Info line on 1300 437 222. Our members consist of the state and territory hepatitis organisations and other key services providing hepatitis services. Page updated: 14 November 2018

















