He points out that though a drug to treat patients now exists, they must still continue their treatment for their entire lives. Even if Taiwan's National Health Insurance scheme currently covers part of the cost, the time and monetary burdens on patients and their families are still formidable. The only hope for eliminating this burden is developing a workable gene therapy in the future.
他指出，病童雖然有藥可治，但必須終其一生接受治療，即使目前健保已納入給付，對病患來說，時間和金錢仍是沈重的負擔，未來唯有發展基因治療，才能一勞永逸。