One father of a child with hyperammonemia, whose son died waiting for the drug to reduce his blood ammonia concentration to be imported, asked in desperation: "They keep stocks of medicines in case of war, so why can't they keep the drugs which would save children with rare disorders?"
一位兒子罹患高血氨症的父親，在兒子等不及降血氨藥進口過世時忍不住感嘆：「打仗要有戰備用藥，為什麼罕見疾病患者沒有救命藥？」