Terence Tai, convener of the ELSI (Ethical, Legal, and Social Issues) Committee of the National Research Program for Genomic Medicine, says that genetic research aimed at treating patients is often seen as more or less equivalent to testing of pharmaceuticals, and the physical data of participants is collected and retained for future research. The problem is, "It's not clear what kind of research will be done."
國科會「基因體醫學國家型科技計劃研究倫理委員會」（ELSI）召集人戴華指出，以救治病患為目的的基因研究，常與藥物試驗掛在一起，常會收集參與者的檢體以供未來研究，但「究竟要做什麼研究卻又語焉不詳。」