                                               [:p "No, the published data cannot tell you about the risk for your child specifically – this will depend on other factors that are not necessarily captured in the national data. Your child’s specialist cardiologist and/or cardiac surgeon will be able to discuss this with you. These guides on " [:a {:href "http://www.chfed.org.uk/documents/2015/02/talking-to-doctors-pdf-factsheet.pdf"} "speaking to your child’s surgeon"] " or " [:a {:href "http://www.chfed.org.uk/documents/2012/11/second-opinion-factsheet.pdf"} "seeking a second opinion"] ", written by the Children’s Heart Federation, might also be helpful."]
                                               ]}
 
-                              {:title    "Further resources for families of children with heart problems"
+                              {:title    "Charities and support groups for families of children with heart problems"
                                ;                    :short-answer ""
                                :glossary []
                                :body     [:div
+                                          [:p "We have collated a list of charities and support groups for families of children with heart problems (all active as of 2016). Some of them specialise in certain heart conditions while others are only active in certain places."]
                                           (render-charity-list)
+                                          
+                                          [:p "NOTE: As of 2016, Royal Victoria Hospital in Belfast no longer operates on children with congenital heart disease."]
                                           ]}
                               ]}
 
                    {:section "Who developed this site and how"
-                    :faqs    [{:title    "About us"
+                    :faqs    [{:title    "About us (MIKE LINK to all organisations: UCL CORU for UCL; DS stats lab (?), KCL Tim’s group; Sense about Science, CHF)…. "
                                :glossary []
                                :body     [:div
                                           [:.image-para [:p [:img.pull-left


                              {:title        "Are there any limitations to using a formula?"
                               :short-answer "Yes – a child’s chances of survival can never be completely captured in a single formula. "
                               :glossary     [:risk-adjustment]
                               :body         [:div
                                              [:p "Yes there are. While taking into account the complexity of each child’s medical problems in a formula allows for fairer assessment of a hospital’s survival rate, it still cannot make it completely fair. There will always be information about important factors that affect a child’s chances of survival that are not routinely collected for national bodies and so cannot be captured by a formula that was developed using national data. "]
                                              [:p "Any statistical formula has to be developed on existing data and so the data will be typically at least a year out of date. So risk adjustment cannot adjust or account for future changes to the way data is collected (for instance more complete data) or new methods of surgical or medical management. Often, these statistical formulas are updated every few years with more up to date (in 2016, we updated PRAiS for the third time). "]]}

                               :body         [:div
                                              [:p "Two very common measures used for looking at a hospital’s outcomes are “survival at discharge from hospital” and “30 day survival” after an operation. Survival at discharge is often used in other contexts as it’s the easiest to obtain – it is included within standard hospital records. However, survival to discharge does depend on the discharge procedures at that hospital. For instance, some hospitals will transfer very sick patients to other, more specialised hospitals, meaning that more patients will be alive at discharge from that hospital than the specialised hospital. Some hospitals might have close links with local palliative care services and so might discharge patients to these services if further treatment is considered unavailing. Again, such hospitals with have more patients alive at discharge compared to a hospital that look after the sickest patients until they die. "]
                                              [:p "Therefore, if it is available, “30 day survival” after surgery is considered a more objective and preferable statistic than “survival to hospital discharge”, since it does not depend on the hospital’s discharge procedures."]
                                              [:p "While longer term survival is extremely important (see (MIKE LINK to longer term survival FAQ)), 30-day survival post surgery was initially chosen as it is more straightforward to link this outcome to a child’s surgery and post-operative care than a longer range survival  period which might, for instance, incorporate further treatment at different hospitals. The other important aspect of monitoring 30-day survival, particularly within hospitals, is that any worrying outcomes can be investigated very quickly since the survival outcomes are available (locally) within 30 days of a child’s operation."]]}
                              ]
                    }

