 
 (def unassoc-charity-list
   [
-   [:a {:href "www.chfed.org.uk"} "Children’s heart federation"]
-   [:a {:href "www.tinytickers.org"} "TINY TICKERS"]
-   [:a {:href "www.dhg.org.uk"} "DOWNS HEART GROUP"]
-   [:a {:href "www.patchesheartgroup.org"} "PATCHES HEART GROUP"]
-   [:a {:href "www.lagans.org.uk"} "LAGAN’S FOUNDATION"]
-   [:a {:href "www.lhm.org.uk"} "LITTLE HEARTS MATTER"]
-   [:a {:href "www.thesf.org.uk"} "SOMERVILLE FOUNDATION"]
-   [:a {:href "www.bhf.org.uk"} "BRITISH HEART FOUNDATION"]
-   [:a {:href "www.maxappeal.org.uk"} "MAX APPEAL"]
-   [:a {:href "www.heartline.org.uk"} "HEARTLINE FAMILIES"]
-   [:a {:href "www.younghearts.org.uk"} "YOUNG HEARTS"]
-   [:a {:href "www.heartrhythmcharity.org.uk"} "ARRHYTHMIA ALLIANCE"]
-   [:a {:href "www.c-r-y.org.uk"} "CRY – Cardiac Risk in the Young"]
-   [:a {:href "www.arc-uk.org"} "ARC – Antenatal Results and Choices"]
-   [:a {:href "www.benwilliamstrust.org.uk"} "BEN WILLIAMS TRUST"]
-   [:a {:href "www.cardiomyopathy.org"} "CARDIOMYOPATHY UK"]
-   [:a {:href "www.heartchild.info"} "CHILDREN’S HEART ASSOCIATION"]
-   [:a {:href "www.chd-uk.co.uk"} "CHD-UK Congenital Heart Defects UK"]
-   [:a {:href "www.amelia-matters.org.uk"} "AMELIA MATTERS"]
-   [:a {:href "www.cafamily.org.uk"} "CONTACT A FAMILY"]
-   [:a {:href "www.22crew.org"} "THE22CREW"]
+   [:a {:href "www.amelia-matters.org.uk"} "Amelia Matters: supporting children born with congenital heart disease."]
+   [:a {:href "www.arc-uk.org"} "Antenatal Results and Choices (ARC): helping parents and healthcare professionals through antenatal screening and its consequences"]
+   [:a {:href "www.heartrhythmcharity.org.uk"} "Arrhythmia Alliance: improving the diagnosis, treatment and quality of life for all those affected by arrhythmias."]
+   [:a {:href "www.benwilliamstrust.org.uk"} "Ben Williams Trust: supports children with abnormal heart rhythms (arrhythmias) and their families "]
+   [:a {:href "www.bhf.org.uk"} "British Heart Foundation: working to fight against cardiovascular disease."]
+   [:a {:href "www.c-r-y.org.uk"} "Cardiac Risk in the Young (CRY): preventing young sudden cardiac deaths through awareness, screening and research, and supporting affected families."]
+   [:a {:href "www.cardiomyopathy.org"} "Cardiomyopathy UK: providing support to patients and families and promoting research for the disease cardiomyopathy"]
+   [:a {:href "www.heartchild.info"} "Children’s Heart Association: supporting families of children with a heart condition."]
+   [:a {:href "www.chfed.org.uk"} "Children’s Heart Federation: the main umbrella body for British congenital heart disease charities and voluntary organisations."]
+   [:a {:href "www.chd-uk.co.uk"} "Congenital Heart Defects UK: educating and raising awareness of congenital heart defects and supporting patients and families."]
+   [:a {:href "www.cafamily.org.uk"} "Contact a family: a national charity for families with disabled children, providing information, advice and support."]
+   [:a {:href "www.dhg.org.uk"} "Down’s Heart Group: a charity offering support and information relating to heart conditions associated with Down's Syndrome."]
+   [:a {:href "www.heartline.org.uk"} "Heartline: supports children with heart disorders and their families, whatever the condition wherever it is treated"]
+    [:a {:href "www.lagans.org.uk"} "Lagan’s Foundation: offers home respite and support services for young children with heart defects or feeding issues."]
+   [:a {:href "www.lhm.org.uk"} "Little Hearts Matter: offers support and information, and raises awareness of those affected when a child has only half a heart."]
+    [:a {:href "www.maxappeal.org.uk"} "Max Appeal: Supports families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion."]
+    [:a {:href "www.younghearts.org.uk"} "Oxford Young Hearts:  support children with heart conditions and their families in the counties served by the Oxford University Hospitals NHS Trust. "]
+   [:a {:href "www.patchesheartgroup.org"} "Patches Heart Group: a support group for children with congenital heart defects / aquired heart conditions and their families in the community."]
+    [:a {:href "www.youngheart.info"} "The Scottish Association for Children with Heart Disorders (SACHD): supports children and young adults with congenital heart disorders, and the families in Scotland."]
+   [:a {:href "www.thesf.org.uk"} "Somerville Foundation: supports young people and adults born with a heart condition."]
+    [:a {:href "www.22crew.org"} "The 22 Crew:  A charity providing resources for patients with 22q deletion and their families."]
+   [:a {:href "www.tinytickers.org"} "Tiny tickers: improving the detection, care and treatment of babies with serious heart conditions"]
    ])
 
 (rum/defc render-charity-list []

                               :short-answer "This website cannot tell you which hospital to go to. Please discuss this with your child’s clinical team or access the support offered by specialist charities such as the Children’s Heart Federation. "
                               :glossary     []
                               :body         [:div
                                              [:p "You can use the national audit data to see how the different hospitals are doing compared to what is predicted from the statistical model for a particular time period. You can also use the " [:a {:href "https://nicor4.nicor.org.uk/CHD/an_paeds.nsf/vwContent/home"} "national audit website"] " to explore how many operations of each type a hospital does and survival outcomes for each of these. However, this cannot, in itself, tell you which hospital you should go to and does not provide proof that one hospital is “better” than any other. The safety or otherwise of a hospital " [:strong "cannot"] " be determined from survival data alone."]

                                              [:p "When considering which hospital, there are many factors to take into account, including how well the clinical team know your child and his or her medical history, any particular medical issues that your child has (for instance, some hospitals specialise in treating children with a particular problem) and how far the hospital is from your home."]

                                              [:p "You should discuss your child’s care with their specialist cardiologist to determine what the best treatment option is for your child."]
                                              [:p "You can also access the support available from national charities such as the " [:a {:href "http://www.chfed.org.uk/documents/2012/11/second-opinion-factsheet.pdf"} "Children’s Heart Federation"] " or " [:a {:href "http://www.lhm.org.uk/"} "Little Hearts Matter"] " or local charities for your specialist children’s hospital (hospital map tab for individual hospital charities). These guides on " [:a {:href "http://www.chfed.org.uk/documents/2015/02/talking-to-doctors-pdf-factsheet.pdf"} "speaking to your child’s surgeon"] " or " [:a {:href "http://www.chfed.org.uk/documents/2012/11/second-opinion-factsheet.pdf"} "seeking a second opinion"] ", written by the Children’s Heart Federation, might also be helpful."]
                                              ]
                               }



                              {:title        "Are there any limitations to using a formula?"
                               :short-answer "Yes – a child’s chances of survival can never be completely captured in a single formula. "
                               :glossary     []
                               :body         [:div
                                              [:p "Yes there are. While taking into account the complexity of each child’s medical problems in a formula allows for fairer assessment of a hospital’s survival rate, it still cannot make it completely fair. There will always be information about important factors that affect a child’s chances of survival that are not routinely collected for national bodies and so cannot be captured by a formula that was developed using national data. "]
                                              [:p "Any statistical formula has to be developed on existing data and so the data will be typically at least a year out of date. So risk adjustment cannot adjust or account for future changes to the way data is collected (for instance more complete data) or new methods of surgical or medical management. Often, these statistical formulas are updated every few years with more up to date (in 2016, we updated PRAiS for the third time). "]]}
