People you don't know come in and look at you and poke you and prod you, and when I tell cancer survivors that this tool we created to protect them is actually preventing their data from being used, especially when only three to four percent of people who have cancer ever even sign up for a clinical study, their reaction is not, "Thank you, God, for protecting my privacy."
你不认识的人会进到病房指指点点 当我告诉得过癌症的人旨在保护他们的 知情同意书阻止了临床研究使用他们的诊断数据 尤其是授权临床研究的癌症患者比例 只有百分之三到四时 他们的反应不是“感谢上帝我的隐私得到了保护”