We need to be able to work with the families, to support the families, to manage those first years with them. We need to be able to really go from universal screening to universal access to treatment, because those treatments are going to change these children's and those families' lives.
那这也是违反这会责任与道德， 我们需要能够与家庭合作， 去支持那些家庭，在最开始的几年里与他们一起， 我们需要从诊断他们是否患病， 发展到普遍有效的治疗方法， 因为这些治疗将会改变 孩子与他们家人的生活