False. Wikipedia actually has a good narrative of the case. Two quotations:

" Although the exact prevalence of this type of MDDS is unknown due to its rarity, at least 15 other cases have been recorded in medical literature.[6] As of April 2017, there were only experimental treatments for MDDS; these had been used only a few times with little evidence of efficacy, and had not been tried with anyone who had the RR2MB variant of the disease.[4][5][7]"

According to the rest of the well-footnoted account, parents and doctors were in agreement about pursuing treatment until Charlie had a series of brain-damaging strokes. At that point, his doctor's opinions diverged from his parents'. 

Look - I get that you want the ACA repealed. And though I disagree, I, like many others here, know that the US will continue to have issues with cost. However, please, please, please stop bringing Charlie Gard into it as fodder for your mill. It's just cruel.