I thought big banks were the most soulless corporations but big pharma really is.  Again, its the big pharma lobby groups that get the sweetheart deals from governments so they can make huge profits on theses drugs.  The government didnt do it to encourage companies to develop treatment for rare diseases.  big pharma goes to where there is easy money to be made.  This is how they can take university studies and trials and profit on it.  You are naive or work for big pharma if you continue to regurgitate the notion that these ridiculous treatment costs are necessary for these treatments to be developed.  This story even shows how the treatment for HTT was a complete fluke.  They had to go find a disease in a text book that would respond to the research.  Now they want the governments to shell out 1 million a year for treatment.  Big Pharma lobby makes governments look incompetant