Excellent & interesting article !
BUT
How about some balance. It is one thing to whinge about the prices of such orphan drugs - but their market is limited and it costs $$ millions if not billions to identify and formulate a potential cure, never mind fund clinical trials and then setting up a production system. Why was this important aspect ignored ?!

As written this effort sounds like the typical anti-corporate propaganda when it could have been much more informative had the development costs and high busines risks been clarified also.