Little Charlie could not breath on his own and was deteriorating and nothing could be done.  Encephalomyopathy mitochondrial DNA depletion syndrome (MDDS) is incurable and brutal and he had severe brain damage.  Obviously tough for the parents (who knows - I might have been fighting like they did to get care for him rather than allowing him to die if I was the father).  As sad as it is I think the end result was what it truly was going to be regardless and his suffering would have been prolonged for a short period longer.  Kind of misleading to exploit his death since it is an extreme case and probably not right to use it to argue your point.  So sad - I feel bad for the family.