Relatives’ Perception of the Quality of End-of-Life Care For People With Severe Dementia: An Exploration of Measurement Instruments
The support experience and quality of end-of-life care are important determinants of the grieving process for relatives of people with dementia. A review of the literature has made it possible to identify and analyze the psychometric qualities of eight measuring instruments intended to assess a relative’s perceptions regarding the end-of-life care provided to the deceased. It remains imperative to find measuring instruments in this field of practice, due to the predominant place occupied by family caregivers in the end-of-life care process. A content validity analysis revealed that two instruments were more complete in regard to the previously selected frame of reference. However, one of them has better psychometric qualities, namely End-of-Life Care in Dementia (EOLD). Its use could make it possible to assess a loved one’s perception as to the quality of end-of-life care in this field of practice.