Measuring quality of life: a new horizon in evaluating treatments for children with Tourette’s disorder
Children with Tourette’s Disorder (TD) need effective treatments adapted to their complex clinical portrait. The evaluation of the effectiveness of treatments for managing these children’s tics is mainly determined by objective measures. However, these measures do not consider the perception of the child, contrary to measures assessing the quality of life, which allow a more global view on the life of the child, going beyond the symptoms that he presents. The objective of this study is to identify and analyze the measuring instruments used in the scientific literature to assess the quality of life of children with TD. Specific characteristics have been targeted to analyze these measures: psychometric properties, respondents, administration, developmental adaptations and conceptual model. A total of eight measures have been identified; two of these were recommended. These recommendations aim to facilitate the choice of a French-speaking decision-maker, clinician or researcher, who wishes to use such an instrument with a child with TD to obtain the unique point of view of the child while evaluating the effects of a treatment.