I am guessing you all know I have a slight obsession for raising awareness about Prader-Willi Syndrome, haha!!!!!
While I am normally found photographing conferences or various fundraisers for The Foundation for Prader Willi Research (FPWR group page), this year I was invited to join the planning committee for the 2nd Annual Live Life Full Gala in Philadelphia on December 2, 2017!!!!! I am so excited to help make this an amazing event and raise money for PWS research!!!!
Yes, I may be slightly obsessed with raising awareness for PWS, but I am COMPLETELY OBSESSED with finding a way to help our sweet Siena to LIVE LIFE FULL!!