Health|Loss and Bravery: Intimate Snapshots From the First Decade of the AIDS Crisis

Image

Demonstrators holding hands during a moment of silence in Foley Square in Manhattan. A march and rally sponsored by the AIDS Coalition to Unleash Power (ACT UP) ended in a sit-in outside the United States Court House. June 30, 1987.CreditCreditSara Krulwich/The New York Times

Past Tense

Loss and Bravery: Intimate Snapshots From the First Decade of the AIDS Crisis

Covering the tragic escalation of an epidemic

Demonstrators holding hands during a moment of silence in Foley Square in Manhattan. A march and rally sponsored by the AIDS Coalition to Unleash Power (ACT UP) ended in a sit-in outside the United States Court House. June 30, 1987.CreditCreditSara Krulwich/The New York Times

Supported by

When the World Health Organization declared Dec. 1 World AIDS Day in 1988, the disease was already a global pandemic. By the end of that year, 82,362 cases of AIDS had been reported in the United States, and more than 61,000 people had died nationwide. In the 30 years since, the disease has killed an estimated 35.4 million people in all, including more than 700,000 in the United States. Today, there are still some 36.9 million people living with H.I.V. and AIDS around the world. The war is far from over in the United States. If current trends continue, half of all black gay and bisexual men will be living with HIV during their lifetimes. The epidemic is hitting hardest in the South, the region of our country with the fewest resources to combat it.

James Estrin, the co-editor of The New York Times’s Lens blog and a senior staff photographer, was a young freelancer when he began covering the AIDS crisis for the paper. “Being a photographer, what you hold on to is the hope that your image had an effect or changed things,” he said recently. “That’s what you want, but rarely can you measure that effect. What you can know is that if your images were published in The New York Times, people won’t be able to say they didn’t know. That’s good and that’s enough.”

We asked three Times photographers and one reporter who covered the AIDS crisis as the epidemic escalated to reflect on how they navigated what was then an unknown and terrifying world.

Image

At Coming Home Hospice in San Francisco, David Brewster, an AIDS patient, being attended to by his friend Michael Bolleri. Jan. 29, 1989.CreditSara Krulwich/The New York Times

Image

Robert Sanford, suffering from AIDS-related blindness, at home with his cat, Stanley. Jan. 20, 1988.CreditSara Krulwich/The New York Times

Image

Sanford, having relearned to play the piano without the benefit of sight, at a recital at the Lighthouse, a New York association for the blind.CreditSara Krulwich/The New York Times

Sara Krulwich, staff photographer:

“The humiliation that was connected to the disease was so horrible to me. My cousin’s boyfriend died, and it was impossible to find anyone that would handle his body. There was only one place in all of New York City that would actually take a person who died of AIDS. It was Redden’s on 14th Street. It’s still there. Many years later, his nephew came to New York, and we went there, and we thanked them.

The people with AIDS had very little time left and most were filled with fear. Fear of the disease. Fear of coming out. When someone would actually let me take their picture, it was an act of enormous generosity, and I always felt very grateful. I hope they could feel that, because being a photographer is so secondary to being the kind of person that subjects can trust.”

Image

An inmate with AIDS at Sing Sing prison in Ossining, N.Y., being visited by his mother and daughter. July 30, 1985.CreditFred R. Conrad/The New York Times

Jane Gross, former staff reporter:

“Early on, we were all learning how to cover AIDS, and the photographers were unbelievably disadvantaged. I could piece together a story of a certain child by doing 15 interviews: doctors, nurses, social workers. But the photographer could never piece together a picture. Either you got the image or you didn’t. If you look back, you can see the number of stories that were illustrated with pictures of health care professionals or objects like the H.I.V. testing forms.”

Image

Margie Wilson dancing to a music video with her foster children, who have AIDS. May 5, 1988.CreditSara Krulwich/The New York Times

Image

Chelli Jackson singing to her foster child, who has AIDS. April 29, 1988.CreditFred R. Conrad/The New York Times

Image

Photographed in 1990, both Heidi Perez and her daughter, Ashley, have AIDS. Her husband had contracted the syndrome from a former girlfriend who had used drugs intravenously. “He always hoped he would go first, then the baby, then me,” Ms. Perez said. “Then he’d know that the baby would be well taken care of.”CreditFred R. Conrad/The New York Times

Fred R. Conrad, former staff photographer:

“I was one of the few photographers on the staff that was using strobes and off-camera lighting. You know, portrait studio-type lighting, on location. So for me, the important thing was, no matter how tragic this was, the fact that this person was willing to talk to us and share her story, and allow herself to be photographed, I wanted to make sure it was a beautiful photograph. Why would I try to make this tragedy look even more tragic? Again, it was the whole notion of treating people that were going through this with a great deal of respect. And to do that photographically, as well as in person.”

Image

Members of Act Up (AIDS Coalition to Unleash Power) demonstrating during rush hour in Grand Central Terminal. Jan. 23, 1991.CreditJim Estrin/The New York Times

Image

Andrew Weisser, a volunteer cook, serving a meal at Our House, a Los Angeles facility that helped people with AIDS. Jan. 29, 1989.CreditSara Krulwich/The New York Times

Image

Volunteers at the Names Project in San Francisco sewing quilt panels to memorialize those who have died of AIDS. Sept. 23, 1987. CreditTerrence McCarthy for The New York Times

Gross:

“While it was the same disease, the experience of reporting it — and I assume photographing it — was completely different when it was gay men and when it became essentially people who’d gotten it from a needle. The gay men knew exactly what was going on, and they could talk articulately about the experience they were having. They knew all about the drugs, they became their own best advocates, and for a very long time, gay men were the only people who really knew anything. If you go back and read the stories that are about them, they are the ones telling you the story. The stories that are about drug addicts or children, somebody else is always telling you the story.”

Estrin:

“The Act Up protests were extraordinary. Which isn’t surprising. So many people involved in Act Up were involved in theater or the arts. The types of protests they did were completely different. It had dramatic structure. It was fascinating to photograph. They were, by far, the best protests. They’d have these ‘die-ins.’ They were really smart and well put together.”

Image

Near the Ugandan town of Masaka, a 28-year-old Ugandan woman being comforted by Maureen Nakimera, a social worker from an AIDS support organization. Aug. 23, 1990.CreditSara Krulwich/The New York Times

Krulwich:

“Shooting in Africa was very different. It was much harder. There was enormous stigma connected with the disease, and it felt bad to just take pictures of someone who was dying and go away. It felt so cold. Luckily, I had a Polaroid camera with me, and that turned out to be a wonderful icebreaker. Being able to give a person who might have never seen a picture of themselves a photo they could keep made me happy and often made my job a little easier."

Image

A memorial service at St. Francis Xavier Church for gay activist Diego J. Lopez, who died of AIDS. Lopez was a social worker and psychotherapist who served in the Vietnam War. A one-time clinical director at Gay Men's Health Crisis, he developed a training program for AIDS volunteers that became a model for organizations in other cities. Oct. 2, 1986.CreditFred R. Conrad/The New York Times

A version of this article appears in print on , on Page A20 of the New York edition with the headline: Loss, Bravery and a Deadly Disease. Order Reprints | Today’s Paper | Subscribe