As someone recently diagnosed with FSHD, I need to understand what healthcare professionals are typically part of a care team and the most crucial advice for engaging with a neurologist or neuromuscular specialist. List the recommended specialists and the key advice for neurologists.
Navigate to fshdsociety.org. Navigate to the 'Finding Care' page under 'Living with FSHD'. Locate the 'Your Healthcare Team' section on the 'Finding Care' page. Identify and list the recommended healthcare specialists from this section. Locate the description for 'Neurologist / Neuromuscular Specialist' within the 'Your Healthcare Team' section. Extract and state the key recommendation provided for this specialist.
Successfully navigate to the 'Finding Care' page (https://www.fshdsociety.org/living-with-fshd/managing-fshd/finding-care/). Identify and list at least three of the following healthcare specialists: Primary Care Physician (PCP) or General Practitioner (GP), Neurologist / Neuromuscular Specialist, Occupational Therapist (OT), Physical Therapist (PT). State the key recommendation for a 'Neurologist / Neuromuscular Specialist' exactly as: 'We recommend establishing yourself as a patient with this type of specialist. They will tend to know more about your FSHD than a PCP/GP. In the future, when treatments become available, it is likely that this type of specialist will be most able to prescribe it.'