I've been recently diagnosed with FSHD and need to understand the recommended healthcare specialists for managing this condition. What types of providers should I consider for my care team, and what is the most important advice for establishing care with a Neurologist or Neuromuscular Specialist?
Navigate to fshdsociety.org. Find the section related to 'Living with FSHD' or 'Finding Care'. Locate the 'Your Healthcare Team' section on the relevant page. Identify and list the recommended healthcare specialists. Read the description for 'Neurologist / Neuromuscular Specialist'. Extract and state the key recommendation for this specialist.
Successfully navigate to the 'Finding Care' page or equivalent section providing healthcare team information. Identify and list at least three types of healthcare specialists recommended on the page (e.g., Primary Care Physician, Occupational Therapist, Physical Therapist, Neurologist/Neuromuscular Specialist). State the key recommendation for a 'Neurologist / Neuromuscular Specialist', which is: 'We recommend establishing yourself as a patient with this type of specialist. They will tend to know more about your FSHD than a PCP/GP. In the future, when treatments become available, it is likely that this type of specialist will be most able to prescribe it.'