A patient with a rheumatic disease is interested in understanding the scope of data collected directly from patients regarding their COVID-19 experiences. Identify what types of data are collected from patients, how many patients have contributed, and how a patient can contribute their own data to the registry.
Navigate to the 'Our Data & Publications' section. Click on 'Patient Experience Survey Data'. Identify the types of data collected from patients. Locate the number of patients who have contributed data. Find information on how a patient can contribute their own data to the registry.
State the types of data collected from patients (e.g., demographics, disease characteristics, COVID-19 symptoms, treatments, outcomes, vaccination status, and mental health). State the approximate number of patients who have contributed data (e.g., 'over 10,000 patients'). Describe how a patient can contribute their own data to the registry (e.g., by completing the secure online survey via a specific link).